6-week update on ocaliva : Update on me. For... - PBC Foundation

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6-week update on ocaliva

Ottley3 profile image
20 Replies

Update on me. For reference I was diagnosed with PBC in March 2017, with the levels in the parentheses below. Went on urso which was helping but then plateaued over the summer. Started Ocaliva 11/13. I was very nervous about it. Was really itchy weeks 2-4, it’s better now.

ALP from 274 to 191 ( high of 375)

ALT from 89 to 67 (high of 207)

AST from 52 to 39 (high of 139)

Still a ways to go but I’m feeling very hopeful and grateful.

Thanks so much to all of you for your support and advice!

Xo,

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Ottley3 profile image
Ottley3
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20 Replies

Do you have aih as well

Ottley3 profile image
Ottley3 in reply to

No, just pbc.

in reply toOttley3

Your alt is high. Did your doctor check your blood for asma and ANA please

Ottley3 profile image
Ottley3 in reply to

Yes I have tested negative twice for aih. Thanks.

KevinHall10_ profile image
KevinHall10_ in reply to

I am on urso and oclavia and my alt still is 133. What does that have to do with asmatha and ana. Now im curious.

in reply toKevinHall10_

It’s a marker for autoimmune hepatitis. It’s common to have pbc and aih.

Mirimaur profile image
Mirimaur in reply to

Your alt can be raised without having aih . It can be raised with just PBC .

in reply toMirimaur

Yes it can but it shouldn’t elevate to high and sustain. Let’s just hope that it’s a normal alt level.

Ottley3 profile image
Ottley3 in reply to

My goal is normallabs so I also hope it continues. For me normalALT would be 10-49 so a ways to go.

Mirimaur profile image
Mirimaur in reply to

My alt was high along with my raised alp and gamma until I took Urso and then all returned to normal. I had all relevent tests and liver biopsy and was told I just had PBC. From hepatologists at Royal Free

Ktltel profile image
Ktltel

Yahoo!! 👏👏👏🙌🙌🙌

Always great to hear!!

Stella ❤

gwillistexas profile image
gwillistexas

That’s great progress!🌹

EileenUSA profile image
EileenUSA

Good for you! Very hopeful. Thanks for sharing the good news.

butterflyEi profile image
butterflyEi

Good news Ottley3

Well done

Happy New Year

GrittyReads profile image
GrittyReads

Great news, so glad to hear all is reducing to normal and that you feel less itchy etc.

Happy New Year!

Wocket profile image
Wocket

Going in the right direction 😀

JaneIng profile image
JaneIng

Great news! Are you on both Urso and ocaliva?

Ottley3 profile image
Ottley3 in reply toJaneIng

Yes. Been on urso for 8 months 😊

JaneIng profile image
JaneIng in reply toOttley3

Thanks. :-)

Your alk phos is < 200 which is where you want it to be as per my hepatologist. Your numbers are going in the right direction. Hopefully that trend continues.

When will your doctor test it again?

Happy for you! May you have a healthy & happy 2018!!! 🤗🎉👍🏻

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