I had all my hair cut off last Saturday as I have no strength in my arms anymore to hold the hairdryer !! Was a sad day go to work and everyone says it looks great and the new colour us fab !!
Inside I'm screaming I didn't want to have it cur off !!
Then today I have my mid year review my team leader says you look so well ! I smile and say thought I would give you this to put in my file .
It's the latest report from my neurologist
Complete and utter silence as she reads it !!
Whey hey reality hits her between the eyes like a thunder bolt !!
OMG she says I had no idea !!
The report advises of all the meds I'm on and the fact that PBC has a huge impact on my fatigue !!
The numbness un my legs and lack of balance are because my leg muscles are minus 4 and retreating and needs further investigation as my cervical spine has degeneration and there is a question mark around my t5 vertebrae.
This means he wants to do a full spinal mri ASAP and also needs a further blood test to check my muscle mass creatine levels. I need to have my amitriptyline increased gradually increased in 10mg steps to help with the muscle tension .
I may also need a muscle biopsy at a later date .
She looks at me and says now I understand why you cannot do any extra.
She then clears her throat and said how are you managing to work full time !!
Pricless when the dla turn you down !!
Slightly bemused and shatterd