I applied to do a college course two weeks ago, swedish body massage...had a letter this afternoon asking for more information from my consultant so I rang the college and was asked mainly about the physical ability I have as would need to stand up to 75 minutes to do full body massage and also needed 4 case studies. I said if I rest up 24 hours before my class I will be able to manage..she insisted that it is very strenuous course and she needed to hear from my consultant that I would be able to complete it...she said she knew nothing about my conditions AIH/PBC so she googled them and found all sorts of information, mainly fatigue and weakness and yes I do have these, but not every day. She then asked about contact with the hepatitis...I said contact; she replied well hepatitis is contageous and the board of beauty therapies needs to know their clients are safe...I went ballistic saying I am not contageous,..hepatitis means inflammation of the liver not I touch you, you get me too lol....I said I am not contageous, what I have is autoimmune and you cannot catch it at all.
I gave her the british liver trust web site details and said you can check on here..what is it with the word hepatitis that people always seem to assume the worst.....I did not ask for these diseases, they came on out of the blue, one minute I was healthy and fit, the next I am not..I think something needs making more public about the stigma involved..I know our conditions are rare...but geeeese what happened to equality and diversity....just so peeved at all this. It also applies to working....I can no longer do care work because it is exhausting yes...but also because of the hepatitis stigma...we need to do something. BUT WHAT?
Sorry about moan but I think it's about time we were given a fairchance at normal life including work, college what ever we decide we would like to do.