Has anyone recently had a tranplant assessm... - PBC Foundation

PBC Foundation

9,386 members7,990 posts

Has anyone recently had a tranplant assessment done in England?

littlemo profile image
3 Replies

I am awaiting an appointment to go for liver transplant assessment in London and am wondering what to expect when I get there?

Written by
littlemo profile image
littlemo
To view profiles and participate in discussions please or .
Read more about...
3 Replies
LindaRose profile image
LindaRose

The assessments vary hospital to hospital, which one are you going to? You will basically go through a battery of tests, xrays etc to make sure you are fit enough but unwell enough to have the transplant ! Lots of blood tests, fitness tests, meetings with doctors etc. Certainly nothing to worry about. They will then look at all their results, talk amongst themselves and then decide if you are a suitable candidate

busylady profile image
busylady

Hi little mo, I have been assessed twice and this is a quick round up.............

For the assessment I had to go in for a week, mainly because as an in patient it is easier for them to squeeze you into slots for each of the tests.

You have - all the routine bloods done - no surprise there then!!

I had an MRI scan with contrast ( an injection to show up the blood supply to the liver)

Cardio ultrasound ( to check heart OK for operation) and an ECG ( same as before)

Lung volume/function tests - lots of nose clips and blowing into machine to check lung capacity

Liver ultrasound ( but like you have these every 6 months now anyway) to check for tumours.

Chest x ray

You also meet a dietician, who discusses your diet and maintaining weight

You see a pharmasist who goes through all the meds with you - I was put on calcium and Vit D tabs by them.

You also see a social worker who tends to chat about your home/social support network etc and financial worries, would discuss what your children know and they also have information they can give them to look at that would be age appropriate.

You also see a transplant nurse specialist who will go through it all with you.

The ward rounds are very multidisciplinary, you are seen by the surgeons, anaesthatist and your Consultant. They see you once a day and will go through the test results as they get the,

Then they have a once a week meeting with everyone there ( social workers, dietician, nurses, anaesthatist surgeons) to discuss your case and your results and if you should go on the list.

Hope that helps? I am writing a blog of my experiences as I am now on the list, if you want to please feel free to have a look

angiewithpbc.blogspot.co.uk/

littlemo profile image
littlemo

Thanks for that girls I am having mine done in King College Hospital in London so any info greatly appreciated. bfn take care.

You may also like...

Has anyone had pale colored stools as a side effect of ursodoil?

Anyone on here had a rising bilirubin and managed to get it done with treatment or other measures?

I am now worried that if I dont get started on something soon my liver may take a turn for the...

Treatment for AIH-has anyone had it?

saw my consultant today and he wants me to have a liver biopsy to confirm Auto immune hepatitis,...

Has anyone else had infertility issues due to PBC? Where you able to have a child with treatment?

going through my fourth IUI procedure. I was wondering if anyone has fertility issues or any success

Has anyone had a MRE (not an MRI) at the Mayo Clinic? If so, I'd love to hear about it.

I'm trying to get one scheduled, but would have to travel and it could get pretty expensive, so I...