Calling to everyone with EGPA being treated with Benralizimab. For me it has been life changing and hope to soon be off pred completely having tapered down to 1mg/day. Next May NICE will make a decision on Benra and EGPA - lets hope for a positive result. However a likely outcome could be to stop us using or making more difficult access to Benra via the Asthma clinics. Benra treatment costs the nhs 15000 a year per patient so this is a real risk. I intend to do a bit more research and potentially ask this community to visit the NICE website and tell our stories and how Benra ( if its the case) has positively effected our lives. I got this information yesterday from Prof Jayne at Addenbrookes.
Benra and NICE: Calling to everyone with EGPA... - Vasculitis UK
Benra and NICE
Written by
EGPAGuy
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