I was misdiagnosed with PMR for years. It was eventually diagnosed as vasculitis and it's attacked my kidney. I am not suitable for dialysis and my prognosis is 6 months to live. My egfr is5 and I am Asymptomatic at the moment. IAM angry it took so long to get a proper diagnosis.
Three years : I was misdiagnosed with PMR for... - Vasculitis UK
Three years
Written by
eyeBRing
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
Sorry to hear this but we did mention 2 years ago on the the PMRGCAuk forum that we thought your “PMR “ might have been GCA. Obviously that wasn’t investigated sufficiently by your doctors…
Not what you're looking for?
You may also like...
After Three years I am been taken off my medication for my illness Anca vasculitis.
On June 2015 I only had days to live my kidneys where at 6%
I was send to hospital in Letterkenny...
A three dog story
Eighteen months ago our Labrador was diagnosed with an autoimmune disease. She was treated with IV...
Going in to full remission after Two years,
Took my last steroids tablet this morning been on over 2years
I have Anca Vasculitis which hit my...
Armistice Day 100 Years
I have been 'Thinking About/ Considering Armistice Day', 100 years on....I actually Finished this...
Is it usual to be on three types of immuno-suppressants at the same time
Hi all, just a quick question. I went to see my specialist at the hospital this week regarding my...