Three years : I was misdiagnosed with PMR for... - Vasculitis UK

Vasculitis UK

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Three years

eyeBRing profile image
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I was misdiagnosed with PMR for years. It was eventually diagnosed as vasculitis and it's attacked my kidney. I am not suitable for dialysis and my prognosis is 6 months to live. My egfr is5 and I am Asymptomatic at the moment. IAM angry it took so long to get a proper diagnosis.

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eyeBRing
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DorsetLady profile image
DorsetLady

Sorry to hear this but we did mention 2 years ago on the the PMRGCAuk forum that we thought your “PMR “ might have been GCA. Obviously that wasn’t investigated sufficiently by your doctors…

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