update on reducing medication

[Main1234]

OH went to see consultant and reducing medication ( MMF) was discussed as we thought. He was initially diagnosed 7 years ago.

before deciding reduction of medication bloods ( not sure what they will be testing) to be taken and a review appointment again in 6 months so no decisions until then.

routine bloods now every 3 months.

Consultant did mention she would like him in andronic acid .. he said he would like a bone density scan before deciding which I personally think is the way forward. He takes vitamin D daily, keeps fit and generally does ok.

Guess rather an anticlimax we will see what happens in 6 months.

[Mooka]

Sorry for his disappointment. If he goes on A A he should have calcium as well. Also get any dental work done beforehand as dentists hate it.

[Candy-rojo]

Hi,

Sorry about the anticlimax but look, how great is it that he’s generally fit? It’s what we all want to be.

Zoledronic acid infusions are fine. I’m due to have one yearly. I worked in the cancer area of the hospital and once every 6 months or so we’d have our former Chemo patients in for their Zoledronic Acid infusion. It was almost like a spa treatment day for them: they were the survivors and this was helping their bones. It’s definitely something to be celebrated. He’s clearly doing really well and I hope you’ll see in 6 months how far he’s come!

[Main1234 in reply to Candy-rojo]

Thank you for your kind message