Patient and Carer Voice - Survey

[zoe69]

The first public consultation on a draft set of quality statements for rare disease has just been launched.

You have the opportunity to have an input. Please take the time to complete the survey (it took me around 15 minutes). Have in mind that you are answering how best care should look like - not what it is now! Make comments as well.

You can visit the website by scanning the QR code or click here:

rarediseaseqs.org/