B12 injections after loading dose - Vasculitis UK

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B12 injections after loading dose

Avocado_deb profile image
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Hi looking for advice. After getting biopsy being diagnosed with IgA Vasculitis we find I was deficiency in b12.

Had my 6 loading doses last one on 6th October.

Just the past week or more iv had Severe Drowseyness and eyes rolling, extreme fatigue 😩

I'm worried, iv not called Dr yet usually can't get through but do anyone know if this extreme fatigue is down to finishing the loading dose??

Thanks

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Avocado_deb
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RedPoppy2 profile image
RedPoppy2

Hi,

I've been having monthly B12 injections for about 15 years now. I don't remember having exhaustion after finishing the first, intensive treatment (loading doses). However, I do find that I feel unwell/severely fatigued the day after I've had a B12 injection, but then fine again. I would check this with your GP.

I hope you feel better soon.

Poshcards profile image
Poshcards

I am on tablets at one each morning and I have felt the opposite, less fatigue etc xx

DogHospiceMom profile image
DogHospiceMom

I was diagnosed with small fiber neuropathy, Vasculitis, Central Nervous System Disorder, Autonomic Nervous System Disorder, chronic Stroke, and many more issues. Many who have Lupus also have other disorders not diagnosed. I also have Sjogrens as well as MTHFR. This is a genetic disorder that inhibits the liver from doing its job of methylation. There are many delineations of MTHFR. I have the mutation that inhibits my body from metabolizing vitamin B. This can cause Homocysteine to build up in your bloodstream. Without giving your body the correct methylated vitamin B and Folic Acid, the homocysteine will build up in your bloodstream and cause heart disease, stroke and blood clots. After I went into Complete Heart Block while in recovery from out patient surgery, they implanted me with a pacemaker/defibrillator. A simple blood test can measure the homocysteine in your bloodstream. It is a type of amino acid, a chemical your body uses to make protein. Normally, vitamins B12, B6, & folic acid break down the homocysteine and changes it to other substances your body needs. There should be very little Homocysteine left in the bloodstream. If your levels are high, it may be a sign of a vitamin deficiency, heart disease or rare inherited disorder. Excess levels of Homocysteine may increase your risk for blood clots, heart attack and stroke. Symptoms include:

Dizziness, Weakness, Fatigue, Pale Skin, Sore Tongue & Mouth, Tingling in hands, feet, arms, and or legs. In addition, hydrixychloriquine was the first medication I was put on. After 18 months I was taken off due to damage to my eyes. Beside causing optic nerve atrophy, it caused macular issues as well as balance issues. I would fall multiple times a day, hard, many times hitting my head. Eventually a neurologist sent me to a balance specialist who diagnosed the problem and sent me to an eye specialist that had prisms put in my glasses to retrain my brain. It only took a year and I stopped falling from the first time I put the glasses on.

I still have breathing issues with any exertion, however, it is tremendously improved.

I refused to go on any more drugs to manage the lupus and Sjogrens with the exception of cevemeline or pilocarpine for mouth dryness. I was prescribed scalara contacts for eye dryness. I take adderall for chronic fatigue. I take a supplement called Homocysteine Supreme for my MTHFR as well as many other supplements. I also invested in an infrared sauna. Using it daily for 9 months, using liquid glutathione as well as stem cell patches, I put myself in remission for Lupus.

I was hospitalized in September with acute abdominal pain. After 3 days in the hospital and many tests they found a high grade stenosis of the celiac trunk as well as another problem with SMA. Since that visit I had an angiogram CAT scan of the abdomen and have now been referred to a Vascular Surgeon.

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