Invitation to participate in a study - Vasculitis UK

Vasculitis UK

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Invitation to participate in a study

zoe69 profile image
zoe69ModeratorVolunteerVasculitis UK
7 Replies

Vasculitis UK is supporting this study and we would welcome those eligible to take the opportunity to have their say. Your personal experience and opinion matters.

Eligibility

Vasculitis and PMR patients who have received steroids for at least 6 months in the last 2 years.

If you need more information or have questions please email: zoi@vasculitis.org.uk

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zoe69
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7 Replies
Kafkaontheshore profile image
Kafkaontheshore

Be aware, I tried to complete the registration form for this study on Facebook last night and my Facebook is now frozen!!

zoe69 profile image
zoe69ModeratorVolunteerVasculitis UK in reply toKafkaontheshore

Have you tried to switch off and on your device? I have been in and out of the registration form without having an issue. It is annoying when it happens though.

Kafkaontheshore profile image
Kafkaontheshore in reply tozoe69

I went to their site via website and have now registered thanks 👍

Nightingales profile image
Nightingales

I volunteered and have been accepted with an interview booked. I found it to be a very organised professional well run site and it looks like a much needed study. I was pleased to see that PMR was included.

zoe69 profile image
zoe69ModeratorVolunteerVasculitis UK in reply toNightingales

I will feedback this to the team, thank you.GCA/PMR patients are key components of this study as they are steroid users usually for prolonged time.

Bcol profile image
Bcol

I've registered, will see what happens next.

Gangley profile image
Gangley

are you accepting Canadian patients?

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