Vasculitus: I have just started Myfenax 1000mg... - Vasculitis UK

Vasculitis UK

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Vasculitus

Trilliano73 profile image
4 Replies

I have just started Myfenax 1000mg with 50g Prednisolone & 600mg Pregabin I have vasculitis and Neuropathy and my skin has become very sensitive very itchy

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Trilliano73
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Birmingham64 profile image
Birmingham64

As this is a UK website Myfenax is obviously used in the UK,i am english but i now live in New Zealand & Myfenax isnt used here as i was diagnosed with Wegener's GPA in November 2018 & this drug is not on our information sheets,wonder if anyone else is on it in the UK & if they are having good results from it

mumu profile image
mumu

I have vasculitis WGP , among other drugs i take pregabalin for nerve damage, it works but at a cost, giddy - sometimes , not as sharp mentally , headaches sometimes in the morning. But the terrible burning and shooting pains all over one side of my body goes and it also gets rid of numbness in feet - peripheral neuropathy ???. Its a bummer taking drugs but better than being in pain and not having a quality of life. I take max about 300 with a little pain left, try to go lower and whoa pain back

Suzym2u profile image
Suzym2uModeratorVasculitis UK

Are you taking the medication to control the Vasculitis? Do you mean Mycophenolate Mofetile ?

Trilliano73 profile image
Trilliano73 in reply toSuzym2u

Yeah that’s the one !

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