Vasculitis in lower legs : Hi all, I’ve had... - Vasculitis UK

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Vasculitis in lower legs

2stents profile image
2 Replies

Hi all, I’ve had this rash since November last year, started feeling really ill lightheaded nausea found I had a small bleed on back of brain ( nothing to worry about!!!)

My legs get worse as the day goes on getting redder a bit swollen and a bit of fluid was told it was Vasculitis

Had god knows how many blood tests and nothing showing up.. see a dermatologist at the end of July.

Just seen a vascular specialist this morning and he said it’s to do my my heart ( I have 2 stents fitted )

Legs don’t look to bad at the mo as I’ve had them elevated

Anyone else had the same thing

Thank in advance

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SK86 profile image
SK86

Hi, I've had rash on my feet which then travelled up to my thighs and had it all over both my arms. Started off as little red spots, then became hive like and blistery. Was diagnosed as hand foot and mouth disease at first until the condition got worse. Finally referred to a dermatologist and been diagnosed as vasculitis. Waiting for a biopsy. On steroids at the moment for it. Have no other information. Rashs improved but the pain on my limbs are constant.

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2stents in reply toSK86

Hi SK86 sounds pretty much like mine rash improves but definitely gets worse during the day. My body aches all over some days during the night my joints seem to get stiffer, I go to see dermatologist end of July,

Please keep me updated and how you get on with the biopsy

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