MPO with impaired kidneys

[xz3sgn]

Hi

I was diagnosed with MPO Vasculitis in August 2015 with impaired kidneys Had a course of cyclophosphomide, steroids and now on azathioprine. I'm on remission and reducing steroid 1 mg every month. Of late I have developed pain on my left arm & shoulder blade. Remember having read some body experiencing the same.Want to know what treatment was advised and if it worked. Any suggestion/advice most welcome. Thnx

[michichgo]

I was diagnosed in 2013 with MPA vasculitis with near total kidney failure. Fortunately, my 15% function increased to 25%. Though in remission, I take Mycophenolate to keep my immune system in check. I also take a host of other meds for general pain and neuropathy pain.

All that aside, I get terrible pain in my shoulder blades, especially with fatigue. I've never figured out why but with all the other pain and maladies that started with vasculitis, I've not investigated the problem further.

Wishing you better health.

Michele

[xz3sgn in reply to michichgo]

Many thnx for responding Michichgo. All ye best for your good health

[Suzym2u Moderator Vasculitis UK]

Is your kidney function being monitored, it could be the azathioprine is not strong enough to control the Vasculitis , I should have a chat with your consultant about this. Any new or reoccurring symptoms should always be investigated