Vasculitis Awareness Month Video - Living with an Autoimmune Disorder.

[John_Mills]

To mark Vasculitis Awareness Month, Kelly Jefferies (supported by Shanali Pereira) has produced an Awareness Video: "Living with an autoimmune disorder"

winster.org/mp4/Livingwitha...

[amms43]

Oh dear, the video rings so many bells. I tend to believe that these feelings and emotions are mostly me being rather wet and feeble, but then I find it is quite common among fellow sufferers. I feel my world has shrunk so much and try as I may to keep going, my ability to do so seems to decrease steadily. Of course I am getting older all the time but I dread losing my independence. Hey Ho. Onward and Upward.

[Peep3]

This is my husband to a tee, and unfortunately my daughter has EDS so tis her as well. It's worrying that there are so many people now with invisible diseases.

[PMRpro in reply to Peep3]

There always have been - but they didn't know!

[Thelmarina in reply to PMRpro]

😂

[Katie18]

Would it be possible to put this video on the Vasculitis UK website so that we can share it on social media to help raise awareness please?

[Suzym2u Moderator Vasculitis UK in reply to Katie18]

It is on the vuk website under the heading News 😊

[Katie18]

Sorry it’s already on there I’ve found it 😀👍 thank you

[PattyMPA]

Thank you to the creators of this nice awareness video.

[PattyMPA]

I notice a lot of us have bad hips and leg pain since dx of ANCA vasculitis. Mine is hip bursitis. My Rheum doesn't think it is Mononeuritis Multiplex but I wonder. Are we suffering this due to the high dieses of Prednisone breaking down our hips? I also gained 40 lbs since Jan 2018 when I was dx abd started on high dose Pred. Down to 1 mg now for past 2 mo.

[StephanieDiane]

Hi John, how can I share this video with my friends on Facebook

[Suzym2u Moderator Vasculitis UK in reply to StephanieDiane]

It is now on the vuk website under the heading News 😊

[Katie18 in reply to Suzym2u]

Hi Suzy I really like the daily facts that you are tweeting from @vascuk throughout the month 👍

[Suzym2u Moderator Vasculitis UK in reply to Katie18]

Written by Kelly one of VUKs trustees ...Kelly also created the video 😊