Appointment update: I went to see my... - Vasculitis UK

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Appointment update

lou1972 profile image
3 Replies

I went to see my consultant on Tuesday and she is still insists I have Dermititis

See photo of the mountain of medication I now have. Every day for 2 weeks I have to bandage my legs for 24 hours amd re do. First putting on Viscopaste like what you have in if broken your leg or arm and then wrapped in Coban bandage. Also given Fucibet, antibiotics as some marks are infected and Atarax. No change so far but perhaps I am being hopeful

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lou1972
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Christophene47 profile image
Christophene47

You may want to see a specialist for a 2nd opinion. What symptoms are making her think you have skin inflammation?

PS Does Zincopaste help anything?

lou1972 profile image
lou1972 in reply toChristophene47

I am hoping to go back to Addenbrooks

I have not heard of Zincopaste?

Christophene47 profile image
Christophene47

Based on what you are describing, you need a specialist in dermatology, and a good one. Could you be allergic to anything? Is it all over, or just in certain places? It seems no biopsy of an affected area was done. I took Naproxyn for many years for pain associated with scoliosis and did well for almost 10 years. Then I started getting blisters on my hands and feet; my own dermatologist, a very consciousness doctor ordered various blood tests, all negative. He did a biopsy suggestive of allergy, but vague. He invited me to meet him at a local medical school for difficult diagnostic cases. A dermatological pathologist there said he thought he knew what it was. That afternoon ,my own dermatologist called with news of a disease called epidermolysis bullosa, not good, not curable.

I found a dermatologist at Jefferson University in Philadelphia who repeated all the same tests; nothing. Talking about it with the doctor, at a second visit, I mentioned that this blistering started in July and seemed to go away in early October. A check of the Physicians Desk Reference quickly revealed that Naproxyn causes blistering when one has a lot of sun exposure. This was a time in my life when we were at the beach every weekend, and spent time in the Caribbean in winter when my husband had time off.

Stopped the Naproxyn, and it never came back.

My point is that "dermatitis" is not a diagnosis; it just means your skin is infammed. Skin conditions can be caused by systemic conditions , meds, allergies, internal disease, and you need someone experienced to figure it out.Your consultant is not the one.

Put the gorilla suit on and demand a good dermatologist.

You didn't mention what your underlying diagnosis is.??? Are you diabetic?

Good luck. If it were me, I would stop the meds for "dermatitis "until you see a good, thoughtful dermatologist .

Good luck.

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