I have had GPA for 6 years and live pretty well now on a kidney function of around 25% (this having gradually increased from 2% when diagnosed). I have always enjoyed hill walking with my partner and with my local walking group. However for the last year I have had intermittent claudication in my left leg - tests have now shown that I have a 12 cm length of artery which is completely blocked. Keyhole surgery to insert stents is not an option meaning an arterial bypass is the only surgical solution. I have been offered this (although it isn't medically necessary at the moment) - on the basis that it is interfering with my lifestyle. I would dearly love to get back to pain free walking again but am nervous about the operation. I wondered whether any of you with poor kidney function had had this done and what the outcome was - I certainly wouldn't want to further jeopardise my kidney function. An alternative is to try to increase my exercise level (which is already reasonably good) to encourage new blood vessels to form/enlarge. I have started on this regime already but again a question - has anyone conquered their intermittent claudication pain by exercise alone? Look forward to hearing about your experiences.
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Dirock
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Hi thanks for your response. Yes I have a renal consultant and am just composing an email to her as I am not due in clinic again until April. I know she won't be keen but I will ask the question! Thanks for the link on exercise - will read with interest.
I'm going to comment on the general anesthetic part of your post, as I have no experience with claudification.
My kidney function ranges from 25-30%, never higher. I've underwent two hip replacement surgeries, both under general anesthetic, and experienced no negative kidney issues.
I thought the same thing! I was never as low as 2% function. Did you require dialysis? That would be even more frightening. Hope things clear up for you soon.
I personally feel this disease does a lot more damage to our bodies than most doctors realize. In the past five years, a number of somewhat-significant health issues have arisen, for me. It gets tiresome, really, but "chin-up" is the attitude that keeps me going on the right path!! Be well.
Yes I was in hospital for a month in 2012 (all over Christmas!) and had regular dialysis and 7 plasma exchanges. I had a 9% kidney function by the time I left hospital and it has very gradually crept up to its current level. It was very scary particularly as I have had 2 close relatives die of the same thing - I thought I was going to follow. So I am very grateful to the team in Manchester who brought me back from the brink and for the relatively normal life I lead. But yes the side effects of the disease or drugs do keep surfacing to keep the me on my toes! Take care
I've been told I need a new knee because of large doses of steroid but can't be put under so I'm having an epidural or similar basicly I will be awake not looking forward to it but just grin and bear it my kidney function is around 25% regards Glen.
I had knee surgery (not a replacement) with a spinal anaesthetic - the metal was put in in Italy where there was no sedation, just a load of dishy Italian doctors who wanted to practise their English, didn't even get time to listen to the music DVD I'd chosen. It was fine, When the metalwork was removed in Scotland I again had a spinal - but was given temazepam so I slept through the lot. I was totally tee-d off!!!!
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