The experience we are looking for in these patient experts - It could also involve attending a meeting in London at some stage.
We are looking for someone with Giant Cell Arteritis who is not yet in remission (but has relapsing disease) and has been on glucocorticoid-based treatment long-term and is still on it.
A second patient who experiences relapses but who cannot take glucocorticoids would also be helpful.
Please contact me, John Mills - john.mills@vasculitis.org.uk
Thank you
Hi John
I had GCA confirmed in August 2016 and have been on Prednisolone since that date. I would be quite happy to be considered for the patient expert Nice are looking for
Keith
Hi noticed that you have already had one volunteer- don't know exact criteria but am happy to volunteer. I started out with PMR Nov 2014 and then developed GCA about Feb 2016. Am on steroids but have not been able to get below 16 mg ( mostly at 20mg-18mg ) for about 18 months. Am also on Leflounomide.
Jackie
Thank you for all your replies and emails
Can anyone help with cerebral vasculitis?You are invited to participate in an important study about the effects of glucocorticoids (steroids). There have been many questions and enquiries regarding the Flu Vaccine, so we thought we would share this information from PHE.Share your views on the new standards for keeping patient data secure - closing date September 7th
My 10 year old and vasculitis 
