Many questions and not many answers.

[speedyg0519]

Hi I am new here

I'm a 53 female.

Six months ago I was diagnosed with "Specific Autoimmune Disease" and

on May 19,2017 I was confirmed with "Eosinophilia syndrome/Churg Syndrome"

My question:

Does anyone else have a combo diagnosis? Separately they are treatable.

Doctors are trying to figure out the right combination of meds for me.as "Churg Strauss"

is a very rare disease and now you throw in the autoimmune disease

Thank you for any information you may be able to provide.

[Suzym2u Moderator Vasculitis UK]

CSS ( EGPA ) is a specific autoimmune disease. This page from the VUK website might help with information for you. It was written by one of the leading experts. vasculitis.org.uk/about-vas...

CSS ( EGP ) is extremely rare, thought to be around 1000 recorded cases here in the UK.

[Hidden]

Hi Speedy,

I am a little confused, " specific autoimmune disease " isn't a diagnosis, it sounds like more of a descriptive term. As Susan has said EGPA ( Churg Strauss Syndrome ) is an auto immne disease which means the immune system attacks the body and causes inflammation.

EGPA is a variant of Vasculitis ( there are over 18 different types ), the immune system attacks the lining of the blood vessels causing inflammation. EGPA also has an allergic component which is manaifested in high eosinophils ( a type of white blood cell ). It's commonly associated with late onset asthma.

As it's rare the most important thing is to see a Consultant with good experience in treating EGPA. The mainstay of treatment is Prednisolone in combination with other immunosupressants, much depends on how severe your disease is and what organs it affects.

You are welcome to phone or e mail the VUK helpline for more information.

vasculitis.org.uk/helpline

Best wishes

Lynn