Last December GSK pharmaceutical company asked Vasculitis UK if they could put them in touch with people living with Churg Strauss Syndrome who would help them make a video to show their scientists and researchers what it's like living with the disease. The aim was to encourage them to do more research into it. I volunteered as anything that helps find better treatment or a cure must be a good thing.
Im sorry the video is very long and repetitive as it's the uncut version and I was responding to questions they asked me. But as its my story I can share it with you and you can always listen to just some of it.
I thought it may be of interest to other 'churgies' who are going through similar things. Hopefully the link will work.
You might need to copy and paste the whole Link into your browser.