I got to the ambulatory Emergency care unit at 10am this morning. Plan of action was bloods, Halter monitor & Dermatology Opinion.
Had my bloods taken which were ENA ANTI Ds DNA C2 blood test & more for autoantibodies.
I was told 10 days for results.
I met the Dermatologist, have to say I found him very arrogant.
His diagnosis I have vasculitis not aware of what form, & my blood tests don't really reveal anything which I was stumped by, & my condition will come & go like any But doesn't recommend any toxic treatment as the side effects can be worse than the condition itself.
Legs were examined & a biopsy denied..
He said we don't need to do a biopsy as it will only tell us what we already know. & I said " what exactly do you actually know" !! 🤷🏼♀️ because as far as I am aware my bloods do show a lot, & my heart is having AF episodes, my lungs have tiny multiple Granulomas, I have chronic sinusitis & vision issues, I also have lesions & my bones ache deep inside the bone I'm exhausted all of the time, I have lost nearly a stone in weight & my blood counts show that something is most definitely wrong, I said I've had amazing support awareness & advice from Vasculitis UK & I know now that I need to be under a multi disciplinary team, or a specialist centre who know all about Vasculitis, its dangers & treatment process.
As I read if ANCA positive & treatment delayed 90% of patients die within 2 years from respiratory failure or severe Organ damage.
He then went on to say I could have Hydroxychloroquine. & nothing else...
Was told to stop panicking & worrying as it's not dangerous or life threatening..
My father has had an email back from Lorraine Harper & shes happy to see me all I need is my referral from my doctor on Friday. 🤞🏻
Halter monitor didn't happen today so I will get an appointment in the post.
I ended up asking for a biopsy today & I had a punch biopsy for diagnosis on my left leg lesion. Told results within a month or more.