South Wales Vasculitis Support Group Meeting January 23rd 2016

Emma Hughes from Genetic Alliance UK will going along to talk about the Rare Disease Network and how it will affect those diagnosed with a rare disease in Wales.

Jennny Fulford-Brown and Ryan Davies will be giving feedback from the Rare Disease Patient Network launch from October 2015.

Please follow this link for more details and to book a place

1 Reply

  • This support meeting is in Wales this weekend, please let Ryan know asap please if you wish to attend.

    Thank you


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