I feel like I keep bobbing in and out of this forum looking for answers to health problems for myself, my sister and my son who have very similar symptoms at different stages of progression. My sis is now due to see Dr Lordon at Newcastle as she has pronounced lung involvement so may yet get a diagnosis of vasculitis. I am still plagued by chronic sinus problems but with a low level c anca 1:40 the idea of Wegeners was dismissed a year ago. My son is really quite ill with a whole raft of awful symptoms and being seen by various depts at different hospitals for each. Our Mum died of undiagnosed Wegeners despite losing an eye and a lung in the years preceding her death.
My sis and I attended the Vasculitis patient symposium last weeken...fabulous info...and its clear that diagnosis is extremely tricky, and that early diagnosis is key...which is even more tricky!
Does anyone know of a good and discerning Doctor in the North East area or do we need to see David Jayne to get help up here?