Hi I would really like some advice about my condition.
I had a biopsy last summer on my lower legs which were swollen and ulcerated. The biopsy showed I have a vasculitis of the small and medium vessels and they thought it could be cutaneous polyarteritis nodosa as my anca levels were negative and other bloods seemed ok. Once put on prednisolone they healed, azathioprine was given to me as a maintenance but I was unable to take that as it made me feel very poorly. The main problem I have at the moment is nerve pain in my feet and now my legs. I had nerve conduction studies taken which showed a problem with the sensory nerves. Since seeing the consultant in January I have also had nerve twitching or little spasms which started in my feet and now are all over my body. They do not give me any pain however. I was referred to a neurologist who has said that they couldn't see any twitching at the time I was there and are letting my rheumatologist deal with it. My inflammatory markers are not raised and I had a renal angiogram which showed the vessels are normal. I was taking pregabalin for the pain but came off that to see if the twitching was a side effect of that as advised by my rheumatologist. I am still having the twitching. I was thinking that perhaps this could be something else ie motor neurons or ms,,,, as my skin condition has healed,, although scarred quite badly. I am now feeling very worried that I could have one of these other horrible diseases. Has anyone else experienced something similar with the muscle twitching all over. I also think my legs are weaker as I find it hard to stand for any length of time.
I would be so very grateful for any thoughts or advise.
Thank you kindly