Hi. I'm Lynda and I've just been Dx with vasculitis (although they haven't identified a cause so likely to be idiopathic). I started with mononeuritis multiplex in 2010 and that has progressed over the years into livedo on both legs, ulcers, raynauds, loss of sensation in both feet, motor and sensory loss of right ulnar nerve and left median. So having gone through loads of specialists and being tested extensively, I seem to have a vasculitis which is only affecting my skin and peripheral nervous system.
I was diagnosed last night and they immediately whipped me into hospital and I had my first steroid IV this morning. I start on cyclophosphamide on Monday. Apparently I'm then going to be coming in for three more treatments, 14 days apart.
Any advice anyone can offer me re taking this medication? Any side effects to watch for?