Methotrexate & pred : I'm losing A lot of hair... - Vasculitis UK

Vasculitis UK

7,865 members6,893 posts

Methotrexate & pred

Ravi35 profile image
10 Replies

I'm losing A lot of hair from my head, a lot comes out when washing/brushing it, even if I run my fingers through it I have a good couple of strands. I hardly have a lot of hair as it is, it's upsetting.

I am also tapering again, but lady time I had no hair loss from steroids pred.

Written by
Ravi35 profile image
Ravi35
To view profiles and participate in discussions please or .
Read more about...
10 Replies
piglette profile image
piglette

Hair loss does seem to be a side effect of Methotrexate. I have a friend with PMR who is complaining like mad about hair loss, she is still on steroids as well but tapering fast.

PatriciaAnn profile image
PatriciaAnn

Hi Ravi. I've also posted this on the V-UK Facebook page for those who don't use FB.

I'm sorry to hear about your hair. It is so upsetting. It ought to be the last of our worries but it isn't ,it is so personal and so upsetting. I used Nioxin. It won't stop it coming out but will help thicken your hair and stimulate your scalp. You can get details here, and there is an on-line consultration nioxin.com/en-UK/home-page..... I got the three products together - you can buy them on Amazon. Redken also do good products for thinning hair. I got Redken from my hairdresser but you may be able to get those on Amazon. Why not mention this to your consultant? See if there is something else which would work just as well on the vasculitis but be kinder to your hair. If he/she is worth anything he/she will understand. Take care.

PatriciaAnn

AndrewT profile image
AndrewT

Dear Ravi35,

I think that we all get a bit of hair loss, I know that I do- along with dental problems-but and it is a BIG but.....We are all still alive! I'm sorry if this sounds unsympathetic, It's not supposed to, but surely a little- or even a lot- of hair loss is a small price to pay to be alive, isn't it? If you are still worried after reading, and carefully considering, this advice then do talk to your doctor(s)/consultant(s) regarding what can be done. Sorry if, as I said above, this sound uncaring- it isn't; I'm just trying to give a sense of proportion here.

I send you my best wishes, really I do.

AndrewT

Ravi35 profile image
Ravi35 in reply toAndrewT

Hi Andrew no offence taken at all, I am greatful everyday that I'm alive and can spend each day with my family. The hair loss is upsetting sling with lots of other side effects, I will get through this. I'm determined.

AndrewT profile image
AndrewT in reply toRavi35

I'm glad that you weren't offended, by my comments, Ravi. I'm also glad that you feel the same way, as I do, about how precious life is. If you want to 'talk' to me further, please do. In any event I send you my very best wishes.

Keep well (ok as well as....)

AndrewT

BronteM profile image
BronteM

When I was taking MTX I lost about 50% of my hair - it was also very dry and difficult to style in any way, and barely grew. Immediately I stopped the methotrexate, fine hair started growing back under the 'straw' thatch. It grew surprisingly quickly, and my hair is now back to normal even though I am still on steroids. So I think it's probably the MTX, not the steroids. I know that doesn't help you while you're on your current treatment, but thought you'd like to know that it will probably come back strongly if/when you can stop the drug that's causing it. in the meantime, my thoughts are with you. It's truly not a trivial problem as it affects so much of your well being and your ability to face the world.

Ravi35 profile image
Ravi35 in reply toBronteM

Thank you for your inns thoughts.

It's prob the methotrexate as I've been on prednisolone for now going to be 9 months.

BronteM profile image
BronteM in reply toRavi35

I’m a long way down the line now…..still on steroids but pretty stable and on tociluzimab injections every two weeks. My hair is fine, thicker than most of my contemporaries and growing pretty fast so needs cutting every six weeks. I hope you find a treatment that really works for you and can feel confident about your hair!

Lovsterlover profile image
Lovsterlover in reply toBronteM

I am taking 50mg Imuran a day, plus prednisolone. I too have lots of hair coming out when I brush it, plus it looks like a haystack, no matter what I wash it in and I have tried every conditioner, but nothing works. Luckily I had thick hair to start with I did think it couldbe the Imuran, but I can't stop taking at moment. The dose I am on doesn't seem to be completely controlling my cutaneous vasculitis, so my rheumy may suggest a higher dose of the Imuran . Hope not.

BronteM profile image
BronteM in reply toLovsterlover

Sorry, think I put my reply in the wrong place, but it is there!

Not what you're looking for?

You may also like...

Methotrexate & Pred

My first dose if mtx tablets yesterday, previous 10 weeks were injections and I feel soo nauseous....
Debba profile image

Methotrexate

Just taken my first dose of methotrexate today (15mg) and feeling washed out - anyone know if is...
Dawnanna profile image

About Methotrexate

About Methotrexate: I was diagnosed and treated for MPA from 2007 to 2009. I was declared in...

Methotrexate and Migraines

Hi hope you can help. My hubby, who has Rheumatoid Vasculitis, is on Methotrexate 25mg sub-cut (as...
PhoebeO profile image

So much weight gain, moonface and facial hair

In about 5 weeks I have put 2 stone on (28lbs), I have moo face and I am now getting a lot of...
DawnMezza profile image

Moderation team

See all
Suzi70 profile image
Suzi70Administrator
JaneLE profile image
JaneLEAdministrator
Charlie_Harper profile image
Charlie_HarperAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.