In January 1998 the late Dr. Martin Lockwood treated me with a drug then called Campath, (Alemtuzumab) at Addenbrooke’s Hospital Cambridge. I was suffering with Wegener’s Granulomatosis. Since then the Vasculitis Clinic at Addenbrooke’s now headed by Dr. David Jayne has been monitoring my condition annually and I am very pleased to say that I have not needed further treatment. And I have had excellent care.
At the beginning of September this year I received to my surprise a letter from the Abertawe Bro Morgannwg University Health Board informing me that I had been referred to their Renal Outpatients Department. I was surprised as I had never been in contact with any doctor regarding renal problems.
However, on making enquiries with my local primary care centre I was informed that the reason for the referral was that Addenbrooke’s had made an application for funding from my local Health Board and that they had refused on the grounds that I should be treated ‘locally.'
Not one of the bodies involved, my G.P nor my local Health Board had had the decency to inform me of their decision. In fact I was due to attend a clinic at Addenbrooke’s at the beginning of October and if I had not queried the referral to the renal outpatients I would have unknowingly attended the clinic at Cambridge.
It would appear that we are not patients under the care of the NHS any more, but merely accounting problems. And after fifteen years my health is now in the hands of an accountant.