I have Polymyalgia and for the last 18 months have had symptoms if GCA. Burning temes, jaw cramping, tongue pain with spasms, head pain with tenderness in the scalp of those areas. My bloods are always normal and biopsy is negative. Currently on 4mgs Prednisolone & 150mgs Azathioprine. For the last 4 months I have had violet- blue eye lids does anyone else suffer from this? Thanks Runrig x
Undiagnosed GCA: I have Polymyalgia and for... - Vasculitis UK
Undiagnosed GCA

Written by

Runrig01
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•

Suzym2uModeratorVasculitis UK
Runrig01 have you asked this question in the PMRGCA community too?
Susan
Not what you're looking for?
You may also like...
GCA Diagnosis, Arm/Leg Vasculitis?
Hello, I was diagnosed with GCA this past April in the emergency room. I was experiencing...
Does anyone get bursitis, plantar fasciitis, etc. that last for weeks, often months?
I have had a series of quite severe painful areas of my body in the last few years and am beginning...
Mycophenolate side effects
I have been taking Mycophenolate Mofetil for 4 years on a dose of 2000mg per day in a split dose. 2...
peripheral neuropathy with cutaneous vasculitis
I have unfortunately had cut vasculitis for over 45 years. Have been in nremission for a couple of...
Gca and lower legs cramps?
I'm currently awaiting the results of a temporal artery biopsy. My ophthalmologist feels that I...