Hi all, my first post here/anywhere about my illness. I’m feeling very anxious. I’ve read through the forums and know that I am very fortunate to be as healthy as I am, so I’m sorry for complaining.
I have recently (3 months ago) been diagnosed with linear scleroderma. I had it previously from age 9-15, and was treated with 20mg methotrexate a week.
I’m 26 now and noticed new patches of discolouration on my leg so visited a rheumatologist. As soon as I saw her she said I had to go back on the methotrexate, starting with 10mg a week but with a view to increasing this as soon as possible.
Since starting treatment I have suffered from many negative side effects. I take preventative medication for migraines (Propanalol) but this doesn’t seem to work anymore. I feel tired and lethargic, and feel that my depression and anxiety (treated with Fluoxitine) have worsened.
I have also been prone to infections and illnesses, and I’m currently suffering from severe flu. I haven’t felt this ill since I was a child and on methotrexate the first time.
I don’t feel very supported in this. The Dr seemed to jump to methotrexate immediately without discussing options. I have tried to contact them with my concerns but am always told to leave a message, and never get a call back.
Sorry for this long post, I’m not even sure what I’m trying to say. Currently I feel that since my scleroderma doesn’t affect me at all (it’s only cosmetic, I’ve never suffered any joint pain or mobility issues) I’d rather not be on any treatment at all.