Raynauds flare nonstop: Always flare... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Raynauds flare nonstop

BCTK profile image
BCTK
3 Replies

Always flare.. Raynauds.. have Raynauds 15 years..it would flare up for 1 to 4 days... recently hospitalized... went into flare that still with me 9 months later.. stress “they” say... any help anywhere??? Use gloves hot water heating pads heavy socks..2 dogs to keep me warm.. will try anything.. thank u thank u

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BCTK
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3 Replies
amd21 profile image
amd21

Sorry to hear of your trouble.

Have you tried any medicines? I take calcium channel blockers (1st nifedipine, now amlodipine) and they give me pretty total control of symptoms.

Also I moved 450 miles due south from Scotland to south of England that change in climate from cold &:wet to warm & dry really helped too.

Maryie profile image
Maryie

They put me on high blood pressure medicine even though I have low because it helps with blood flow. I almost lost a finger from my Raynaud’s but it is much better now.

bobbybobb profile image
bobbybobb

I had an Iloprost infusion a couple of years ago when I went into hospital. I have also had a stellate ganglian block to keep the blood flow open to my fingers. I can't take nifedipine.

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