Hi, am new to this site. Have been dianosed with raynauds and systemic sclerosis for five years now. I've recently had more lung involvement ie fibrosis and am having cyclophosphamide treatment at present. I'm lucky enough to be well enough to be going to Boston USA to watch my daughter compete in Irish Dancing World Championships, but am having trouble finding reasonable travel insurance. As soon as I mention that I'm on ambulatory oxygen at home the price rockets. The best so far is £600! Has anyone with this condition had any luck with travel insurance? Some companies won't even touch me! Thanks, any advice is much appreaciated.
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