Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for November 2018

Any PSP trials in India?

Hi All, Please let me know if any medical trials schedules in India for near future...it will be helpful for my dad... Thanks in advance..

Hi All, Please let me know if any medical trials schedules in India for near fut...

anis_attar

•5 years ago

1 Reply

Leaning to one side

Hi All My husband with CBD would occasionally when very tired lean toward the right, usually at the end of the day. Normally the next day he would be ok. The...

Hi All My husband with CBD would occasionally when very tired lean toward the ri...

beau1988

•5 years ago

18 Replies

Another UTI, now with bonus kidney stones

Hi all, My husband had another UTI this week, starting in the middle of the night, needing to go every ten minutes, but this time, the antibiotics didn't help...

Hi all, My husband had another UTI this week, starting in the middle of the nigh...

LostinHeadSpace

•5 years ago

7 Replies

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Need details about Nilotinib Tasigna medicines for PSP

Hi All, Anybody has idea about Tasinga(n olotinb) medicine for PSP.Looks like this medicine is mainly from India.Please find the below link.....

Hi All, Anybody has idea about Tasinga(n olotinb) medicine for PSP.Looks like th...

anis_attar

•5 years ago

8 Replies

The PSP Chronicles - You, Me & PSP

This Christmas, consider buying gifts that keeps on giving. Proceeds go to Cure PSP and PSPA. Tim x

This Christmas, consider buying gifts that keeps on giving. Proceeds go to Cure ...

daddyt

•5 years ago

5 Replies

Mum 81 with PSP.

Feeling very cross inside as mum won’t even look at me when iam talking to her but if I walk out of the bedroom and turn my head befor I get to the door I find...

Feeling very cross inside as mum won’t even look at me when iam talking to her b...

Kaylewis

•5 years ago

14 Replies

Goodbye to my Bubby

November 14 - I had to say goodbye tonight to a much loved member of my fur family. Your illness was quick as was your passing, we did our best to keep you...

November 14 - I had to say goodbye tonight to a much loved member of my fur fa...

daddyt

•5 years ago

9 Replies

Need help to take decision

Hi All, Recently I received one email from Jains cow urine therapy .Even they called me and they told they have medicines to cure PSP.Below is the...

Hi All, Recently I received one email from Jains cow urine therapy .Even they ca...

anis_attar

•5 years ago

15 Replies

No Snow Angel

No snow angel, but this will do. Tim x

daddyt

•5 years ago

16 Replies

CBD

Sadly my wife was diagnosed with CBD few months ago. My wife & I attended the family & friends conference in Windsor. At this meeting there were 4 people...

Sadly my wife was diagnosed with CBD few months ago. My wife & I attended the f...

Amth_1948

•5 years ago

26 Replies

Sister had CBD

Hi, it's been a while since I posted on here, my sister was diagnosed with CBD in January of this year, she passed away October 19th. OCTOBER is my birthday...

Hi, it's been a while since I posted on here, my sister was diagnosed with CBD i...

cjp1058

•5 years ago

12 Replies

Signs that death is near

I think I posted something similar before Signs that Death Is Approaching Certain signs and symptoms can help health care providers and family caregivers...

I think I posted something similar before Signs that Death Is Approaching Cert...

daffodil48

•5 years ago

11 Replies

Curious

Hi all Firstly Thankyou for all of your support. Just curious to know if anyone else’s loved one lost the ability to speak.My guy has not spoken for nearly two...

Hi all Firstly Thankyou for all of your support. Just curious to know if anyone ...

demlac

•5 years ago

51 Replies

Christmas Cards

Calling everyone in the UK. Don't forget to order your Christmas cards from the PSPA. I have just ordered mine. Not only does it give them a bit of cash, but...

Calling everyone in the UK. Don't forget to order your Christmas cards from the ...

Heady

•5 years ago

10 Replies

Adrenaline rush

Just getting up and the phone rings - at that time when you think "oh no what have the carers walked into this morning" or "it must be the Duty Manager at the...

Just getting up and the phone rings - at that time when you think "oh no what ha...

AJK2001

•5 years ago

4 Replies

Coffee is good for cognition

I think we've heard this before, but saw an item out of the Krembil Brain Institute in Toronto who examined 3 types of coffee for a cluster of compounds called...

I think we've heard this before, but saw an item out of the Krembil Brain Instit...

raincitygirl

•5 years ago

10 Replies

Result!!

Thank you to. Marie and Kate for spurring me on. Bit between my teeth called the Hospice and explained things pretty tough since discharged. Dreadful sleep,...

Thank you to. Marie and Kate for spurring me on. Bit between my teeth called t...

Tippyleaf

•5 years ago

29 Replies

Top of the morning to you

Twenty minutes into nodding off for the night. I’m almost asleep when I get up to tuck my husband into bed. He falls asleep quickly and I finally doze off an...

Twenty minutes into nodding off for the night. I’m almost asleep when I get up t...

SewBears

•5 years ago

13 Replies

Bipa

My husband has been flailing when he falls asleep on his recliner but now these are are becomin* more and more frequent. He grunts and yells out often as he...

My husband has been flailing when he falls asleep on his recliner but now these ...

Bipa

•5 years ago

14 Replies

What to do next??

I am in the UK and Mum is an extra care flat. We struggle right now as I do all that I can whilst working too. We seem to be arguing alot recently. I have no...

I am in the UK and Mum is an extra care flat. We struggle right now as I do all ...

eurolynch

•5 years ago

17 Replies

CHC development helpful to those seeking funding for home-based care

Passing on a useful piece of information about Clinical Commissioning Groups (CCGs) having to redraft their Continuing Health care (CHC) policies following...

Passing on a useful piece of information about Clinical Commissioning Groups (CC...

BattlingCHC

•5 years ago

3 Replies

CBD

Please post if you are in the NYC area and have CBD. New Jersey ok also. Thanks.

Please post if you are in the NYC area and have CBD. New Jersey ok also. Thanks....

Hidden

•5 years ago

Be the first to reply

CBD

Hello all. In 2000 we moved to a new development we stayed there for 2 years. My husband is 55 and diagnosed with CBD this year. I recently found out that a...

Hello all. In 2000 we moved to a new development we stayed there for 2 years. M...

Hidden

•5 years ago

53 Replies

Dignitas

Hello Does anyone have any experience of this? My. Other has expressed a wish to end her life with their help

Hello Does anyone have any experience of this? My. Other has expressed a wish to...

Hidden

•5 years ago

19 Replies

A sudden change

Hi all It's not been a great day for dad. We have moved to morphine injection as dad started vomiting up old blood this morning. Which has put him in a lot of...

Hi all It's not been a great day for dad. We have moved to morphine injection a...

Ryder123

•5 years ago

13 Replies

Epilim

Hi, I don’t tend to post anything but my mum’s condition feels like it’s entering the difficult phase. Frankly I could handle the lack of mobility but to loose...

Hi, I don’t tend to post anything but my mum’s condition feels like it’s enterin...

Erialcw

•5 years ago

4 Replies

Searching for PSP treatment

Hi, My father is suffering from PSP since last 2 years.Gone through Stem cell therapy, 3 months back,but no sign of improvements.Please suggest or share if any...

Hi, My father is suffering from PSP since last 2 years.Gone through Stem cell th...

anis_attar

•5 years ago

10 Replies

CBD Diagnosis

My dad who is 75 has just been diagnosed with CBD so looking for information on what to expect and consider!!

My dad who is 75 has just been diagnosed with CBD so looking for information on ...

Scoobydoo70

•5 years ago

3 Replies

The new normal.

Up at 12:20 with Larry bell ringing. Going in found him on his side with a pile of diarrhea under him. Got him up and into the bathroom on the toilet. He had a...

Up at 12:20 with Larry bell ringing. Going in found him on his side with a pile ...

Hidden

•5 years ago

29 Replies

Words for the day

Today’s devotional for those of you who might relate. Everyday it speaks to me in a meaningful way.

Today’s devotional for those of you who might relate. Everyday it speaks to me ...

JubileeRanch

•5 years ago

25 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for November 2018

Any PSP trials in India?

Leaning to one side

Another UTI, now with bonus kidney stones

Need details about Nilotinib Tasigna medicines for PSP

The PSP Chronicles - You, Me & PSP

Mum 81 with PSP.

Goodbye to my Bubby

Need help to take decision

No Snow Angel

CBD

Sister had CBD

Signs that death is near

Curious

Christmas Cards

Adrenaline rush

Coffee is good for cognition

Result!!

Top of the morning to you

Bipa

What to do next??

CHC development helpful to those seeking funding for home-based care

CBD

CBD

Dignitas

A sudden change

Epilim

Searching for PSP treatment

CBD Diagnosis

The new normal.

Words for the day

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive