Need details about Nilotinib Tasigna medicines for PSP

[anis_attar]

Hi All,

Anybody has idea about Tasinga(n

olotinb) medicine for PSP.Looks like this medicine is mainly from India.Please find the below link..

clinicaltrials.gov/ct2/show...

Request you to share your experience if any

[Javan]

This is a drug used in cancer treatment.

[anis_attar in reply to Javan]

Thanks Javan,

But in the above shared blog referred for Parkinson's disease..could you please check that blog and confirm

[Javan in reply to anis_attar]

It is only a limited study so the results have not been taken from a large enough medical trial. In a legitimate test you will not make any payment.

[grafixapn in reply to Javan]

Yes, my wife is taking Tasigna off label.

Andy

[Hidden]

It’s not a magic bullet. There have been other studies done with it. If it were very effective it would be well known.

[Christine47]

I suggest you go to supportpsp.com supportpsp.com/index.html. The author's wife takes it with good results. I only know of two others, one with CBD and one with MSA that were not so lucky.

[Richard33]

healthunlocked.com/psp/post...

As Christine47 says, Andy of supportpsp is very enthusiastic about it. The PSP Association put out a bulletin last month about it on this site - as per link above (if the link does not work just search on the site).

It is probably too early days and it is very expensive.

Richard x

[grafixapn]

I posted a while ago that my wife, once a doctor found the study done by Dr Moussa, using Tasigna on Parkinson's patient''s. The study spoke about how the drug removed tau from the brain through the blood brain barrier. My wife asked her neurologist Dr Samanta to precribe the medication. At first he wasn't sure. My wife has had PSP for 16 years now. Based on my wife's neurologist satisticly she should have died by year 13. I also wrote a post where Dr Samanta will talk with any doctor who has a patient with PSP. My wife made her doctor a believer in Tasigna. It's not a cure, but it will slow down the progression of the disease. If you are unable to find my old posts, there is some information on our local PSP support websie

supportpsp.com

or you can contact me.

Andy