Hi, it's been a while since I posted on here, my sister was diagnosed with CBD in January of this year, she passed away October 19th. OCTOBER is my birthday month, it will never be the same for me any more. She was hospitalized for bad angry issues with her husband, and was send 3 hrs away from us, she was showing them angry, so they were keeping her drugged up, they couldnt seem to get that under control, and she started having swolling issues, and ammonia, she had that 3 times, she couldnt walk. When I went to see her, it just broke my heart, i couldnt believe how bad she was.The last time she got ammonia, they told us the only thing they were doing was putting a bandage on it. there was nothing they could do for her. So we had her sent to another place closer to home. The same day she was sent there, she died the next morning at 3:15. It was a Hospice faculty. I mean it is the hardest thing I have been through, there isn't a day that goes by i dont think of her. I miss her so much it brings tears to my eyes! Thank You for listening to me!
Sister had CBD: Hi, it's been a while since... - PSP Association
Sister had CBD
I’m really sorry for your loss! There’s nothing better than sisterly love. Do you have other family members around for support? Hopefully you aren’t going through this alone. It might help if you could share a fond memory or two with your virtual family here on this forum, if you’re up for it? What was your sister like before CBD? How long do you think she had the disease before she was diagnosed? Just random thoughts might help you to cope? I don’t really know, just throwing ideas out there for you to ponder. Take care of yourself because you know that is what she would want you to do. And try to remember that she is no longer suffering. I hope this helps! Sending hugs.
Grief is hard. It takes as much time as it takes.
You have my condolences. Try to remember the good times you had together, not what the disease caused. She is resting in peace now.
Ron
So very sad for you cjp
I'm so sorry your dear sister had to go through this.
I am thinking of you
Love Lynda x
I am so sorry to hear about your sister. How very sad to have to endour that? Both for her and for you. Please stay on the site. We all help each other even when the person we loved has passed. Only a couple of days ago I had people reach out to me and give me strength. You can say what you feel on here and we instantly know what you are talking about and how you feel because we have all gone through similar things.
Remember the good times with your sister. It will be a few months before you can do that but it does happen. You will also have bad days when you least expect it. Even things that wouldn't have upset you will. I know because I am 18months down that road and was so upset a couple of days ago.
Bless you and remember your beloved sister is out of her misery now. She is at peace. Now you need to find peace? Not that easy, as we are so tough on ourselves.
Love to you and you have friends here who understand.
Hugs.
Marie x x
My sincere condolences cjp: your heart must be aching so much right now. One of the hardest things to accept is that we can't do anything to stop that final decline.
Peace and hugs XXX
Anne G.
I am so sorry for your loss. I lost my 55 year old son to PSP May 4, 2017. Believe me the pain will ease up after a year or so, hard as that is to imagine. I agree with Marie, out of nowhere grief and tears and sorrow will come up, and you will wonder what triggered it.
When my father died I was very sad. My son told me, "Mom be glad for what you had, and not so sad for what you lost". I am grateful for the 55 years I had with my son.
I wrote a post PARKINSON'S TO PSP about my son.
Prayers for you...............
So very sorry for your loss. It does take time to accept the loss of a sibling. When my sister died from suicide, her daughter asked the minister if her mother would go to hell because of what she did. His response was "No. She already was in hell here on earth." In a way, I feel my husband was in hell at the end of his life with this awful disease. He also was sent to 2 geriatric psych units because of aggression. For a gentle man, that must have been his hell. He's in heaven now as I'm sure your sister is.
Take care of yourself and remember the joyous times.
Hugs, Liz
I know how you feel. My identical twin sister died 2 years ago from PSP. I miss her every waking moment. We were so close and did everything together. All our children were like brothers and sisters and still are. I think all the time of what life would have been like with her now. Life is cruel
Many warm hugs now and for the days to come. I lost my sister almost 2 years ago.
What a sad, difficult year for you and your sister. Love has a life of its own, and you will continue to feel that special bond with her if you can let go of the larger-than-life memories of the pain and suffering in her final months. I went through an experience with my mother's death almost 40 years ago, as her death was painful and confusing and I wondered, for years, if I could have done something to make the end of her life peaceful. Nurture the memories of the good times; let the other memories fade. Thinking of you,
Marilyn
Hi my dad passed with cbd nov 10th this yr I'm in agreement with you, mum and dad have been my husband and I life for seems like forever.
I'm going to miss my dad so much it hurts to just think about it.
My dad had a great saying "take care of the living" and I believe that, hugs and loves from new Zealand
My sister 59 yrs old diagnosed with CBD a yr ago 
He knows CBD!!!
Mum’s CBD progressing
The miracle of CBD OIL
