PSP

[Flimbosquest]

Hi. My mother has been diagnosed with PSP..

[honjen43]

Welcome Flimbosquest! (interesting moniker!) You have found a place where you will find answers from carers who know what it is like, and can tell you what to expect.

No doubt they will also that it is not THE END but a new normal. They will have answers to your questions and heaps of support for you and your mum.

I lost my husband to CBD 2 years ago, so understand a little what a curve ball this diagnosis is for you both.

Stay in touch and someone will surely respond who truly knows what you need to do from now on.

Hang in there!

Hugs

Jen xxx

[raincitygirl]

Hello and Welcome Flimbosquest

There is a ton of information here about PSP - lots of detail that you won't find anywhere else: from doctors or elsewhere on the internet! Take time to scroll around through the site and read historical post strings. They are often titled with the name of the symptom or problem: e.g. "coughing" "incontinence" "UTIs" "anxiety" etc etc....

As Jen says above, it is not the end of life yet: if your mum is up to it, try to get her out to do things she enjoys, before her mobility or cognition or other issues keep her at home. Many members say: "If you have a bucket list - do it now!" If that's not possible, you'll find a lot of sympathy and help from members here.

Take care of yourself as a family member-caregiver: it is a very taxing role and the stress can really sneak up on you!

Keep in touch.

Anne G.

[Hidden]

Welcome to the site. Support and information will be found here. Ask any question.

[BandT]

Welcome! I am sorry you have had to join this site.

My dad has PSP. The news hit me hard - and i felt physically sick for the longest period. Then, after a few years, i learnt acceptance. I now trawl the internet looking at different therapies which may help his symptoms.

Ask any questions you have - there are so many caring, knowledgeable people here, to support you.

B x

[LuisRodicioRodicio]

Hi Flimbosquest!

I am sorry you have had to join this site.

By internal personal mail I will send you our experiences with PSP. Although each patient is different, they may be useful.

Hugs

Luis