coconut oil Suplement

[ninalulu]

I m new I was reading about coconut oi, i only take supplements what kind i get

[Kevin_1]

Hello ninalulu

Welcome to the forum.

There isn't any evidence that coconut oil is particularly helpful with PSP or CBD. Hopefully someone here has tried it and can tell you about their experience.

The simple rule with all vegetable oils is to find one that is 'cold pressed'. That is that the oil is extracted in a mechanical crushing mill and not by heat and chemicals.

Do you suffer from PSP or CBD, or care for someone who does?

Do introduce yourself. You will be made very welcome by the folk here.

Best to you

Kevin

[Yvonneandgeorge in reply to Kevin_1]

We have tried the coconut oil never saw any changes xxxxx also welcome to the site xxxx Yvonne xxxxx

[ninalulu in reply to Kevin_1]

yes

[Kevin_1 in reply to ninalulu]

Hi ninalulu

I'm so sorry.

Do you have support and what country are you in?

There are folks from many countries here. If we know you country we can give more help.

FWIW my wife is six years into this illness an she is still making good memories... The illness is gutting... but it is not the end.

Warmly

Kevin

[ninalulu in reply to Kevin_1]

hi: iam in nc and need to know what kind i need . your wife is great and i believe in coconut oil to. thanks

[ninalulu in reply to ninalulu]

can you tell me whakind of coconut oi i need to find and where in nc i can find it thanks very much ninalulu

[ninalulu in reply to ninalulu]

i lost all the info you send my computer is not doing good

[Kevin_1 in reply to ninalulu]

Hi ninalulu

No worries

Click here

amazon.com/Organic-Coconut-...

Your doing just fine.

Waiving

Kevin

[ninalulu in reply to Kevin_1]

i have PSP

[ninalulu in reply to ninalulu]

hi; I am looking to in hemp oil, how i take the coconut oil

[raincitygirl]

Welcome ninalulu

Are you a psp or cbd patient? Do tell us about yourself.

Anne G.

[ninalulu in reply to raincitygirl]

ho i buy that

[ninalulu in reply to ninalulu]

any way i try everything 2 medications cardilopa and the other i don't take any more , iam using turmeric /cur-cumin 1,500 twice a day the price is good in ebay, i take omega 3 with vitamin d/3 coq10 and one aspirin 81 mg every day , plus my cholesterol stating every nigh tand try mushroom to

[ninalulu in reply to raincitygirl]

i have psp

[raincitygirl in reply to ninalulu]

Sorry to hear that Ninalulu. Depending on which country you live in, you may be able to buy coconut oil at your local health food store, but as Tippy says below, there is no research that says it is effective. Still, many people are willing to try something that MAY some day, be proven effective through research.

I wish you the best of luck as you make your way through rhis challenging disease.

Anne G

[ninalulu in reply to raincitygirl]

they said cannabis oil ( GOD help me i m going to try to, I KNOW GOD forgive me . LORD help me

[raincitygirl in reply to ninalulu]

I believe God would approve of people who use the resources of our wonderful planet which they believe He created, including all the wonderful plants like cannabis, to help themselves and their loved ones to the best of their ability!

Anne G.

[ninalulu in reply to raincitygirl]

i try everything they told me , I don't have to much money . The DR i went i don't like . today is the primary DR. and I m going to tell him . the neurologist don't make another appointment to see me . i only see the nurse practitioner. i never saw him again, no contact with me whatsoever, he just told me that i have PSP after the MRI . that is umbolivable. sorry my english. thanks ninalulu

[raincitygirl in reply to ninalulu]

That's very sad Ninalulu (although my husband and I had much the same experience May I ask what country you are in? I'm thinking that in some countries with small populations, PSP and CBD are so unknown that there just isn't a "program approach" to the disease: one is told the dx then returned to the family doctor (who understandably knows nothing of the disease) for symptom management!

So far, the UK seems to be the clear leader in managing patients with these diseases....

[Tippyleaf]

Hi Ninalulu

As far as I can find there is absolutely no evidence that coconut oil is beneficial in PSP

But my husband’s family have been very keen he take this and he started on it soon after diagnosis. He feels very positive taking it and asks for it daily

He is 5 years post diagnosis and neurologists keep telling us he has a very slow progression! No idea if the coconut oil has done anything or not but the psychological benefits are positive

Love Tippy

[ninalulu in reply to Tippyleaf]

some people said is very good , i try medication but nothing know im going to try coconut oil ,i believe in natural remedies , that is me, i m taking omega 3 co q10and 1 aspirin

[ninalulu in reply to Tippyleaf]

try it you don;t know what can happen , maybe is good for you or maybe cannabis oil try it ,you never know they help you . good luck

[ninalulu in reply to Tippyleaf]

hi: Tippy how you take the coconut oil. I m going to try it . thanks

[Tippyleaf in reply to ninalulu]

Hi Ninalulu

As previously this is not evidence based.

My husband has a teaspoon of coconut oil every morning in black tea ( with thickener) Hr calls or his oily tea!! In addition I use coconut oil for all cooking for him instead of butter or oil we aim for a tablespoon per day which as I recall was the recommendation.

Good luck with it

Love Tippy

[Kevin_1]

Hi Ninalulu

This one ticks all of the boxes for mechanical extraction etc.

amazon.com/Organic-Coconut-...

There will be others... Just look for cold pressed and no additives for any brand.

You might consider dropping the CQ10. There was a pilot study that seemed to show that it was helpful with PSP. A larger study was then done and the results were that it did not help.

There is a long list of stuff like CQ10, Ethylene Blue etc Sadly each time large controlled study's are done they have been found to ineffective.

I know of no coconut oil studies... So good luck.

Best to you

Kevin

PS We tried CQ10 in large doses for two years. We saw no difference when on it and not on it.

[ninalulu]

i m going to try to find it. thanks