Loo problem

I wondered if it was normal with CBD to need to pee every 1-2 hours 24/7 which my mum does?

[Hidden]

It could be a urinary tract infection.

Symptoms of UTIs

To identify a UTI, keep an eye out for the following symptoms:

A burning feeling when you urinate

A frequent or intense urge to urinate, even though little comes out when you do

Pain or pressure in your back or lower abdomen

Cloudy, dark, bloody, or strange-smelling urine

Feeling tired or shaky

Fever or chills (a sign the infection may have reached your kidneys)

[Javan]

It means some pathways are working and continance is the best thing to have. My wife is the same and I will fight to keep any function going. The longer toilet use is still working the less chance of sores and infection.

[Hidden in reply to Javan]

Thank you for replying, yes your right it but it really wears my Mum out.

[Kevin_1]

Hi Bed42

With PSP and CBD folk often feel the need to go and then nothing happens.

Also the bladder sphincter can become less able to cope. So folk need to go more often. This includes night time which is a killer for both the PSP / CBD person and the carer!

Our Urologist put Liz on Betmiga and Solifenicin. They both help in lessening calls of nature. They support the sphincter in its function.

I would say that it's best to get a Urologist to prescribe these and to supervise them. We have a superb GP team, but they were a little unpractised in these. Even out Neurologist seeks advice from the Urologist on them too. Just ask the GP for a referral to Urology.

Hope this helps

Best

Kevin

[raincitygirl]

I was going to reply same as Kevin. CBD hubby doesn't have this problem during the day but does at night. We are on Urologist-prescribed meds for the bladder. I also agree with the earlier posts about UTI - particularly if it's happening all day and night. Check that out first!

Anne G.

[DeborahRamsden3602]

My mom with psp has exactly the same problem. Initially it was urinary retention and we had to put in a catheter but this was so uncomfortable that we removed it soon after. Ever since she's been up at least 3 times a night to pass urine. Sometimes sits on the loo for 1hr waiting to pass. Uti has been ruled out. I think it's just park of the parcel that psp bring with it. It's exhausting to mom and my dad. But rather out than in...I think!

[LostinHeadSpace]

My husband had a terrible night and following day where he had to go urgently every 15 minutes, he couldn't even sleep in between trips to the bathroom. He went to urgent care and even though the immediate urine test tested negative for a UTI (and--update!--even the long test tested negative for all UTI things), they put him on a strong antibiotic and he was better almost immediately. I don't know what to make of that--if all the tests said it was not a UTI, then why did it respond to treatment? Could it be something in the kidneys or what? But anyway, it did clear up.

[raincitygirl in reply to LostinHeadSpace]

Hi Lost...Rainy here...How long did the improvement after the antibiotic last? We've tried myrbetriq, tamsulosin, condom catheters, depends, oy vey.....what will finally end this horrible constant night-disruption?

sigh.....

Anne G.

[raincitygirl in reply to raincitygirl]

I think I just copied BSilverman here...!

[LostinHeadSpace in reply to raincitygirl]

Hi there! The improvement was immediate and lasting. I'm convinced that it was "caused" somehow by the Parkinson's/CBD. But after one day on the scary antibiotics, it was like you flipped a switch and he was better. He still gets up 1-2 per night for the bathroom, which is new-ish and coincides with all the Parkinson's stuff--but the terrible 24 hours of constant, constant peeing stopped right away.

[bsilverman]

Oy. This is interesting to hear all these stories. My husband with PSP can get up 6 - 7 times a night. Sometimes as soon as he returns to bed he is up again thinking he needs to pee. And often, we waits at the toilet 15 minutes with no result. We did a sonogram and urinalysis and all was said to be fine. The neuro prescribed a sleep med but warned it could make him even more unstable. I’m experimenting with Cannibis instead, hopefully. I have nothing to report yet but I’ll let all know if it helps.

It’s always a treat when I am blessed with a full night’s sleep. It actually happens now and then!

[raincitygirl in reply to bsilverman]

Bsilverman, my husband sounds exactly the same as yours. I will look for your report on the cannabis oil with great interest!

Anne G.