Meds for psp

What is the best medication for psp? Anyone know? Is there a cure??

[Hidden]

There isn’t any cure. Some people take carbidopa/levodopa with some success. For the most part there isn’t any medication. The best thing is exercise, staying active. A physical therapist and speech therapist are useful to see.

[Hidden in reply to Hidden]

Thank you so much for this. Many thanks

[raincitygirl]

Unlike PD there is no medication that effectively fights the disease. I'm sorry your father's dx changed (I believe you had thought it was PD at first). But keep reading this site - look up the historic posts - there is a lot of information on help, including medications, for various symptoms.

And like Jeff166 says, do keep exercise going as long as possible (same advice as with PD).

Cheers!

Anne G.

[Yvonneandgeorge in reply to raincitygirl]

Yes agree with exercise, no medication for us was ever given. Yvonne xxxxx

[Hidden in reply to raincitygirl]

I went to the nurologist today again. Doctors says its Parkinsonism plus with tendancy towards psp. I am very upset. Doctor gave azilect and madapar and said if my father responds to the meds then my father is parkinson only. Otherwise hes psp for which there is no meds said the doctor. I dont know what to do :((

[raincitygirl in reply to Hidden]

Dear Steff,

There is really very little to do! Your neurologist's advice is consistent with that heard by other members here. You aren't missing any steps. Let the medication do its thing and - hopefully! - work! If it doesn't, and IF it is more likely to be PSP, then keep in touch here and the knowledgable members will help you guide your father through symptom management.

Deep breath, one step at a time, in the midst of all the anxiety try to think of something your father really likes and make sure he gets it.

Hugs to you XXX

Anne G.

[Hidden in reply to raincitygirl]

Thank you so much for this. I just wonder whether I should give azilect in addition to madapar as the nurologist told me to do so. I just wonder whether the meds are too much that is azilect and madapar together..? Thanks alot for your kind wishes..God bless all xxx

[raincitygirl in reply to Hidden]

Unless you have any reason to think your neurologist is a fraud (!) assume their professionalism and expertise, and at least try what he/she recommends. If/When uncomfortable with the response, call them to review.

Good luck! Fingers crossed for you!

Anne G.

[Hidden in reply to raincitygirl]

Thank you so much for this. I will try to do so. I was just re-reading the MRI report and they have written that the midbrain size is 8mm which can be observed in psp. I dont know if 8 mm size of midbrain definatelu means psp or not. Unfortunately one year ago the MRi scan hadnt measured the midbrain size :((

[raincitygirl in reply to Hidden]

I don't know either Steff....It's hard reading that stuff when you're not a clinical person! Maddening not to know the meaning of everything, eh?

Hugs,

Anne G.