Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2018

Drama at every step

So mum had the PEG fitted on Tuesday this week and had pulled it out by Wednesday night 💔😢 she continues to pull out her saline drip so is now not getting...

So mum had the PEG fitted on Tuesday this week and had pulled it out by Wednesda...

Careenh

•6 years ago

14 Replies

I’m new here

My husband was diagnosed with PSP over two years ago now but he had been ill for eight years before that. He is now in an excellent Care Home but although it...

My husband was diagnosed with PSP over two years ago now but he had been ill for...

Hidden

•6 years ago

6 Replies

The PSP Chronicles

If anyone is interested in reading the latest Chronicles you can go to wordpressco900.wordpress.com. I've been having trouble posting the link... I think my...

If anyone is interested in reading the latest Chronicles you can go to wordpress...

daddyt

•6 years ago

5 Replies

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Response to you

Thank you for your responses there were so many p I could not respond to them all

Thank you for your responses there were so many p I could not respond to them al...

Janet5

•6 years ago

1 Reply

Bother another angry day

Not such a good day the other day, or today. When I get upset I make myself go into the kitchen and cook... So the other day I decided to start working through...

Not such a good day the other day, or today. When I get upset I make myself go i...

Kevin_1

•6 years ago

107 Replies

Rolators and Riser Recliner Chair For Sale

Hello Everyone SInce G’s death, I have had to move house, and do not have the space to keep her 4 wheeled Rolator or Riser recliner chair so they are up for...

Hello Everyone SInce G’s death, I have had to move house, and do not have the sp...

Gadgetgeek

•6 years ago

2 Replies

my hero Geoff

we had geoffs funeral yesterday his regiment prince of wales own arranged for him to have all the standards at his funeral they played the last post and he...

we had geoffs funeral yesterday his regiment prince of wales own arranged for h...

wheelrace

•6 years ago

13 Replies

Charlie

Hello all just to ask has anyone else seeing there loved one complaining of being dizzy? Charlie keeps saying he feels dizzy and at this point we have stopped...

Hello all just to ask has anyone else seeing there loved one complaining of bein...

Marg52

•6 years ago

7 Replies

Continuing Health Care Reviews.

I read of cases where people qualify for CHC and some time later they have the funding withdrawn at a review. The scenario I see the most is that the CCG...

I read of cases where people qualify for CHC and some time later they have the f...

Kevin_1

•6 years ago

14 Replies

PSP swallowing problem

PSP. Hi does any one have a loved one that is being risk fed due to poor swollowing, we are now told that no agency or continuing care staff can feed mum they...

PSP. Hi does any one have a loved one that is being risk fed due to poor swollow...

Kaylewis

•6 years ago

8 Replies

COQ10?

High I suffer from PSP and am thinking of trying CoQ10. Has anyone had any experience. What is the latest on CoQ10.

High I suffer from PSP and am thinking of trying CoQ10. Has anyone had any exper...

crab2093

•6 years ago

5 Replies

Just a note

Just want to drop a note to say I'm still out here. Since Michael passed, I have less time than ever and therefore haven't written and can only occasionally...

Just want to drop a note to say I'm still out here. Since Michael passed, I hav...

Mikey12345

•6 years ago

20 Replies

Cbd

Hi, please help...our mum has been diagnosed with this awful illness, she has almost lost all her mobility now, can’t sleep, agitated is confused and seeing...

Hi, please help...our mum has been diagnosed with this awful illness, she has al...

Codd_family

•6 years ago

26 Replies

CHC wording

Hi all For those who have been successful in CHC and handed over all their info to the assessors. How did you word your responses to the different domains?...

Hi all For those who have been successful in CHC and handed over all their info ...

Spiralsparkle

•6 years ago

12 Replies

CBD oil.

Hi everybody, has anyone experienced what I can only describe as psychotic type behaviour ( screaming and shouting or getting extremely upset ) from a PSP...

Hi everybody, has anyone experienced what I can only describe as psychotic type ...

edgie

•6 years ago

5 Replies

Fear the end is nearing

Hi to all you lovely people. I haven't posted for a while but still reading the posts. Mum has declined dramatically. She had a nasty fall 5 weeks ago and...

Hi to all you lovely people. I haven't posted for a while but still reading the...

Careenh

•6 years ago

11 Replies

Hope you are doing OK, Jillannf6. We love you!

Thanks, Jillann for liking one of my comments! Keep thinking about you and wondering if that keyboard of yours is still going. You must be joining in every...

Thanks, Jillann for liking one of my comments! Keep thinking about you and wonde...

honjen43

•6 years ago

6 Replies

Not PSP related, but Mum's gone

Hi all, I just wanted to let you know that further to my post last week where I said that my sister and I were having to watch my mums final days at the...

Hi all, I just wanted to let you know that further to my post last week where I ...

Ratcliffe

•6 years ago

17 Replies

Hospice now ends

We have had a large number of caregivers notifying the forum of the loss of a love ones. I am another My wife is now in the arms of Jesus, her Savior and...

We have had a large number of caregivers notifying the forum of the loss of a lo...

Beads0122

•6 years ago

21 Replies

Father's Day tea in the garden

My wife and children did this for me

jmoffat

•6 years ago

11 Replies

It's not about me

It's so hard to keep my focus on what's going on with Bob, without all my emotions getting in the way. It's been a long haul. Last October we were told that it...

It's so hard to keep my focus on what's going on with Bob, without all my emotio...

laroux

•6 years ago

8 Replies

Muscles painfully rigid

Hi Folks Well, Liz didn't get he birthday party at home today. I got a call from the Nursing Home saying Liz had suffered a muscle spasm and had gone to bed on...

Hi Folks Well, Liz didn't get he birthday party at home today. I got a call from...

Kevin_1

•6 years ago

105 Replies

The miracle of CBD OIL

I haven'tposted on here for a couple days , as I have been busy with mom. We are on day 9 of using CBD OIL . It has helped her focus remarkable well ( she now...

I haven'tposted on here for a couple days , as I have been busy with mom. We are...

Cwolpe

•6 years ago

17 Replies

Diarrhoea for 7 weeks

My mum has had PSP for 7 yrs and until recently was doing ok! Mobility more difficult but manages around their bungalow. She can still talk but slower and more...

My mum has had PSP for 7 yrs and until recently was doing ok! Mobility more diff...

Kbaker1

•6 years ago

7 Replies

North meet up in leeds

Not long now so looking forward to it,just a reminder that the meet is taking place at the scarborough hotel in leeds straight across from the train station...

Not long now so looking forward to it,just a reminder that the meet is taking pl...

allotmentartist

•6 years ago

5 Replies

Leon's at Peace Now

Finally after 8 years plus of this wretched illness, P.S.P. Leon took his last breath at 8.30 a.m. yesterday 16.06.2018. He is finally free and at peace....

Finally after 8 years plus of this wretched illness, P.S.P. Leon took his last b...

margh2468

•6 years ago

40 Replies

Said my farewells to Archie

Hi all Well Tuesday I said my final farewell to Archie I gave him the send off with bagpipes that he wanted All our friends came to the wake but none of...

Hi all Well Tuesday I said my final farewell to Archie I gave him the send off...

Suebatt

•6 years ago

46 Replies

Suddenly nonverbal

My husband woke up almost two weeks ago and isn't speaking anymore. Has this happened suddenly with any of you?

My husband woke up almost two weeks ago and isn't speaking anymore. Has this ha...

-shelly26-

•6 years ago

46 Replies

Taming the Hyena

Charles had been up for three nights coughing and coughing. It is so distressing and I'm so helpless. Nurse said it can change from wet to dry and will...

Charles had been up for three nights coughing and coughing. It is so distressin...

Cuttercat

•6 years ago

20 Replies

The ultimate care giver.

I got an email yesterday from a friend of mine who I met through work about 20 years ago. We periodically email each other. She inquired how Larry and I were...

I got an email yesterday from a friend of mine who I met through work about 20 y...

Hidden

•6 years ago

7 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2018

Drama at every step

I’m new here

The PSP Chronicles

Response to you

Bother another angry day

Rolators and Riser Recliner Chair For Sale

my hero Geoff

Charlie

Continuing Health Care Reviews.

PSP swallowing problem

COQ10?

Just a note

Cbd

CHC wording

CBD oil.

Fear the end is nearing

Hope you are doing OK, Jillannf6. We love you!

Not PSP related, but Mum's gone

Hospice now ends

Father's Day tea in the garden

It's not about me

Muscles painfully rigid

The miracle of CBD OIL

Diarrhoea for 7 weeks

North meet up in leeds

Leon's at Peace Now

Said my farewells to Archie

Suddenly nonverbal

Taming the Hyena

The ultimate care giver.

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive