Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for May 2012

my husband has continual breathing difficulties. Has anyone any advice on what treatments help, especially with the agitation and distress.

We already use Carbocystene, Salbutamol and saline nebules in the nebuliser and Oxazipine tablets when the distress gets really bad.

We already use Carbocystene, Salbutamol and saline nebules in the nebuliser and ...

teena2

•12 years ago

10 Replies

Residential homes - how do people cope?

My mum is 76 and can no longer speak or walk. My dad is 78 and is in ill health. He had a minor stroke and mum had to go into a residential home. Even with...

My mum is 76 and can no longer speak or walk. My dad is 78 and is in ill health...

Valda

•12 years ago

4 Replies

Newbie - Question about mental health

Hi, my mother in law was diagnosed about a year ago but we suspect she has had PSP for a number of years. Its all very new to us but recently we are concerned...

Hi, my mother in law was diagnosed about a year ago but we suspect she has had P...

Bubbles1

•12 years ago

10 Replies

Want to take advantage of all our features? Just log in!

Hi there, My mum is really struggling to ben her knees and sit down, She is unable to bend her knees and sit back. Has anyone else had this?

she is fairly immobile most of the time but she has been able to move from one room to another. Now taking her to the toilet is tricky as she is unable to bend...

she is fairly immobile most of the time but she has been able to move from one r...

Radhi1

•12 years ago

6 Replies

The loud gurgle rattle when my husband breaths is often mistaken as a death rattle when new hospice staff come to see him.

Has anyone else experienced this phenomenon? It can be very discomforting when the nurses mention this to family members. We dry up secretions with...

Has anyone else experienced this phenomenon? It can be very discomforting when...

judy1962

•12 years ago

8 Replies

NO PSP Association in Canada

I know there are a few Canadians on here. Like me, you are probably frustrated by the lack of resources, assistance, information, basically everything here in...

I know there are a few Canadians on here. Like me, you are probably frustrated ...

MJ-Mark

•12 years ago

13 Replies

Leeds half marathon 13/05/2012 - sponsors needed

Stacey's page www.justgiving.com Stacey Welsh is fundraising for The PSP Association

Stacey's page www.justgiving.com Stacey Welsh is fundraising for The PSP A...

staceystella

•12 years ago

1 Reply

Belfast Support Group

The next meeting for the Belfast Support Group will take place on 19th June 2012 at the Marie Curie Hospice, Kensington Road, Belfast - the meeting will be...

The next meeting for the Belfast Support Group will take place on 19th June 2012...

PSPA_DebbieB

Partner•12 years ago

Be the first to reply

moaning and sleep deprivation

Yes, yes it is what everyone who cares for someone with PSP suffers with. I never found the answer. You find yourself running on empty because of the lack...

Yes, yes it is what everyone who cares for someone with PSP suffers with. I ...

maeve

•12 years ago

3 Replies

Dear caregivers how do you deal with constant moaning and sleep deprivation

My husband David moans most of the night or makes very loud choking noises. He is not in pain so he says. He has never learned to prevent himself from...

My husband David moans most of the night or makes very loud choking noises. He ...

judy1962

•12 years ago

10 Replies

Search posts

Latest poll

See all polls

What are your main concerns as a carer?

Vote

Topics

All posts(134)

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - PSP Association | HealthUnlocked

PSP Association

All posts for May 2012

my husband has continual breathing difficulties. Has anyone any advice on what treatments help, especially with the agitation and distress.

Residential homes - how do people cope?

Newbie - Question about mental health

Hi there, My mum is really struggling to ben her knees and sit down, She is unable to bend her knees and sit back. Has anyone else had this?

The loud gurgle rattle when my husband breaths is often mistaken as a death rattle when new hospice staff come to see him.

NO PSP Association in Canada

Leeds half marathon 13/05/2012 - sponsors needed

Belfast Support Group

moaning and sleep deprivation

Dear caregivers how do you deal with constant moaning and sleep deprivation

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive