My husband David moans most of the night or makes very loud choking noises. He is not in pain so he says. He has never learned to prevent himself from pulling off his catheter at least once a night. This has been our lives for two years. His illness started in 2004. Is anyone extremely fatigued and feeling as though PSP is taking more than one life? Do you ever feel like you are so tired that you are going to die too. I feel like that today. Please pray that he sleeps for the next full week during the night.
Thank you and with love