Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for July 2023

Diarrhoea

Hi, I posted here last year when I was very sad and in pain and you were enormously helpful. On advise from this community and endorsed by GP, I increased my...

Hi, I posted here last year when I was very sad and in pain and you were enormou...

LMali

•1 year ago

18 Replies

UTI,s

Dropped fron 22.5 prednisone to 20 three days ago and started having bad uti consequences. It must just be a consequence. See if Bactrim antibiotics works....

Dropped fron 22.5 prednisone to 20 three days ago and started having bad uti co...

Seal49

•1 year ago

17 Replies

Opthomology

Is ophthalmology consultation standard with GCA or do you have to demand it ? Everything is blurred now which came on with steroids - saw my usual optician...

Is ophthalmology consultation standard with GCA or do you have to demand it ? E...

Body_bonkers

•1 year ago

25 Replies

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Pain in PMR

Do you always get hip pain with this? I have had neck/shoulders/top of spine/upper chest aches for years which is peaking at the minute. I have had Crohns...

Do you always get hip pain with this? I have had neck/shoulders/top of spine/up...

ian16527

•1 year ago

5 Replies

Hip pain

I searched the archives and cannot find much about this. My hips hurt so much at night that I am awake for hours. I understand this is one of the primary...

I searched the archives and cannot find much about this. My hips hurt so much at...

Gigi1946

•1 year ago

34 Replies

update pins n needles in both thumbs

hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have...

hi , after blood test results, it appears I am low on folic acid, so Dr. Has giv...

9lives

•1 year ago

3 Replies

Brain fog and fatigue in MSK conditions

https://healthunlocked.com/lupusuk/posts/149737303/free-online-seminar-about-brain-fog-and-fatigue-on-wed-26th-july-from-10am-11am?utm_source=notification&utm_m

https://healthunlocked.com/lupusuk/posts/149737303/free-online-seminar-about-bra...

PMRpro

Ambassador•1 year ago

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Vit B 12

I'm still plodding along- it's been 6 years now, and I'm on 5mg pred after a bit of a flare last October, possibly caused by my 5th covid vaccine. I'm still...

I'm still plodding along- it's been 6 years now, and I'm on 5mg pred after a bit...

ponai

•1 year ago

6 Replies

Stopping Alendronic acid

Currently down to 2mg Pred, after 5 years. Should I stop taking my weekly Alendronic acid?Thanks for your input!

Currently down to 2mg Pred, after 5 years. Should I stop taking my weekly Alendr...

BiteyDelano

•1 year ago

6 Replies

Creaky Joints!

Hello Everyone. Having had trouble going down to 4mg Pred previously, I'm nearing the end of a 6 month taper from 5mg to 4mg. Over the last couple of months...

Hello Everyone. Having had trouble going down to 4mg Pred previously, I'm neari...

AshPen9

•1 year ago

36 Replies

Need advice

I've managed tapering to 7mg for the last two months I've done it very gradually. I've been having a light head feels like I'm going to.pass out. On Sunday I...

I've managed tapering to 7mg for the last two months I've done it very graduall...

Kazm04

•1 year ago

11 Replies

delaying Prednisolone by a few hours

hello, back again for some advice. I was diagnosed with PMR/GCA three and a half years ago and after a relapse I am now on 4mg. Next week I will have an...

hello, back again for some advice. I was diagnosed with PMR/GCA three and a hal...

Dolcelatte

•1 year ago

5 Replies

Cerebrex?

My DR prescribed cerebrex and both he and pharmacist advised to stop if I got side effects. Just looked up the side-effects and it's put me off from even...

My DR prescribed cerebrex and both he and pharmacist advised to stop if I got si...

Monkey321

•1 year ago

18 Replies

inherit?

I fell this is inheruted. And it seems like one with PMR has other issues also. PMR hit me at almost 80 yr. and I really did not know one could be in that...

I fell this is inheruted. And it seems like one with PMR has other issues also. ...

stonecreek

•1 year ago

8 Replies

ulcers and boils ???

Hi Can anyone inform me please , do you get mouth ulcers , sores & boils up nose & a runny nose , as if you’ve got a constant cold with PmR ? I go through...

Hi Can anyone inform me please , do you get mouth ulcers , sores & boils up no...

TedTheMaineCoon

•1 year ago

26 Replies

Probiotics

Just wondering how many people also take a probiotic now and any suggestions for a good brand as there are so many to choose from and some must be better than...

Just wondering how many people also take a probiotic now and any suggestions for...

Pusph

•1 year ago

15 Replies

On prednisone with 100 degrees fever

Reduced from 22.5 to 20 mg 3 days ago. I started running a fever between 101.8 and 99.3. Wondering if any connection. Do I need to go to gp or Rheumatologist?

Reduced from 22.5 to 20 mg 3 days ago. I started running a fever between 101.8 a...

Seal49

•1 year ago

6 Replies

new GCA patient

61 year old Caucasian female live inChicago Metro. Sudden onset on severe headaches , jaw pain , Ear pain , neck pain in April’23. Diagnosed with GCA after...

61 year old Caucasian female live inChicago Metro. Sudden onset on severe headac...

Birdfriend

•1 year ago

8 Replies

5mg prednisone is working now, body feels like it has adapted to the lower dose

Aches and pains are much subdued. I do think I can keep lowering, but I am a little worried about my hands now. As in maybe the small amount of prednisone is...

Aches and pains are much subdued. I do think I can keep lowering, but I am a lit...

sdowney717

•1 year ago

12 Replies

Triggers... for GCA

Well 2018 was bad GCA and weight loss and fatigue. Prednisone got me up and weight back Acterma eliminated the prednisone . So for @14 moths I am off...

Well 2018 was bad GCA and weight loss and fatigue. Prednisone got me up and ...

dansGCA

•1 year ago

1 Reply

Tingling, light-headed, low BP - questions

Was feeling very well on 3mg for GCA/PMR... Have been below 5mg pred since last September. Ten days ago felt suddenly bloated, tingling in L cheek and toes...

Was feeling very well on 3mg for GCA/PMR... Have been below 5mg pred since last ...

Viveka

•1 year ago

32 Replies

Leflunomide

Does anybody take this. It is a possibility as I did not get on with methotrexate. Your thoughts would be appreciated. Thank you.

Does anybody take this. It is a possibility as I did not get on with methotrexat...

RachelJDH

•1 year ago

37 Replies

Actemra

I was diagnosed with GCA and PMR in 2018 and lost the vision in my right eye. I was on prednisone and methotrexate for over a year, but then I changed...

I was diagnosed with GCA and PMR in 2018 and lost the vision in my right eye. I ...

brenda1207

•1 year ago

7 Replies

Need advice

Need some advice please. Admitted to hospital middle last week after heart attack. Have been stable on 6.5 mg Pred for 6 weeks but obviously do not intend...

Need some advice please. Admitted to hospital middle last week after heart atta...

jaycee444

•1 year ago

7 Replies

Off pred in just over a year!

I spoke to an old friend the other day. I knew she had Pmr, but she doesn't like talking about it. When I told her about the forum when she first got...

I spoke to an old friend the other day. I knew she had Pmr, but she doesn't lik...

Blossom20

•1 year ago

9 Replies

Elizabeth

Down to 1mg of steroids, symptoms coming back when I have been in bed 5 hours give or take,so I never get a a decent sleep, subsequently feeling tired in the...

Down to 1mg of steroids, symptoms coming back when I have been in bed 5 hours g...

Eliz22

•1 year ago

2 Replies

PMR update

Just a quick note to let all you wonderful people know my journey this year. I have just finished DL taper from 3mg to 2.5mg and will stay on 2.5mg until the...

Just a quick note to let all you wonderful people know my journey this year. I h...

Middleton22

•1 year ago

5 Replies

Ankle Surgery and Rehab

Hi everyone. I'm having another ankle surgery on August 18th and am lucky in that I have the same surgeon, James Brown, that did my other ankle. I've had...

Hi everyone. I'm having another ankle surgery on August 18th and am lucky in th...

Hidden

•1 year ago

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Dark eyes

This may sound odd ! But I keep getting dark marks around my eyes , like a bit of a black eye . It comes & goes . Not sure why , is it pmr or steroid related...

This may sound odd ! But I keep getting dark marks around my eyes , like a bit ...

TedTheMaineCoon

•1 year ago

9 Replies

Yorkshire Support Group Face to Face Meeting, this Thursday, 13 July, in Ilkley

If you are interested in joining our meeting this Thursday you would be made very welcome. Please e-mail yorkshire@pmrgca.org.uk for further details. We...

If you are interested in joining our meeting this Thursday you would be made ver...

Primrose2

•1 year ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

Diarrhoea

UTI,s

Opthomology

Pain in PMR

Hip pain

update pins n needles in both thumbs

Brain fog and fatigue in MSK conditions

Vit B 12

Stopping Alendronic acid

Creaky Joints!

Need advice

delaying Prednisolone by a few hours

Cerebrex?

inherit?

ulcers and boils ???

Probiotics

On prednisone with 100 degrees fever

new GCA patient

5mg prednisone is working now, body feels like it has adapted to the lower dose

Triggers... for GCA

Tingling, light-headed, low BP - questions

Leflunomide

Actemra

Need advice

Off pred in just over a year!

Elizabeth

PMR update

Ankle Surgery and Rehab

Dark eyes

Yorkshire Support Group Face to Face Meeting, this Thursday, 13 July, in Ilkley

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