Pain in PMR

[ian16527]

Do you always get hip pain with this?

I have had neck/shoulders/top of spine/upper chest aches for years which is peaking at the minute.

I have had Crohns for 40 years. My ESR was only 2 when I asked my GP to test in march, although not sure if they did the CRP as well.

I just had an ablation for AF which used to come on prior to an attack of the pain.

I also suffer from fatigue at varying levels

Still looking for a solution but get sick of badgering the gp's (its been going on for 13 years)

[PMRpro Ambassador]

By no means - can be hips, or shoulders, or both. Some wouldn't even really complain about either but other things fit the bill.

Is it muscles or joints? Crohns can be associated with a form of inflammatory arthritis.

ncbi.nlm.nih.gov/pmc/articl...

Look at 4, Comorbid pain.

[ian16527 in reply to PMRpro]

I dont know, but I get pain if I twist my torso and there is some pain when I press the vertebrae in the middle of my shoulder blades. Also if I lie flat then breathe in deeply my sternum hurts. I have some curvature of the spine so the GP is sending me for Physio although tried this 10 years ago.

I know these are vague symptoms but the fatigue is getting bad and if I do any work or lifting then it makes me feel worse.

I think this really started in 1996 and they put it down to post viral fatigue, but I had a bad Crohns attack and was on Prednisolone for 6 months and inuran for many years and wasnt troubled by this problem till 2010.

I know you can get ankylosing spondylitis with CD but thats in the lower back I thought.

Thanks for your reply

Interesting link - Crohns pain is awful and I having a little flare now, but it combines with a whole body sickness that is different to the back pain. I have never ever been given any pain relief for CD as it doesn't often work.

Getting the doctors to join up the dots is difficult

[PMRpro Ambassador in reply to ian16527]

physio.co.uk/what-we-treat/....

Not AS, but this sounds very much as you are describing.

AS typically develops in the lower back first but can spread upwards

spine-health.com/conditions...

is a really good set of articles.

[ian16527 in reply to PMRpro]

Update - been to the Physio and she insists its not related to the Crohns as they would flare up at the same time. She says my x rays are clear for inflammation

I have spondylosis in may upper back.

I have just tried one of the exercises, lying down on the floor and lifting your arms up. It has really made the condition worse so wont be trying that again.

[Mayadill]

Do you always get hip pain with this?

No. None. Ever. It's a kink of my PMR that my hips were paralysed but totally pain-free. Plenty of pain elsewhere!