Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for July 2023

Sore Throat

I’m currently down to 4mg of prednisolone and have a constant sore throat and dry mouth during the night . Is this normal ? What can I do to relieve the...

I’m currently down to 4mg of prednisolone and have a constant sore throat and ...

Conwy_wales

•1 year ago

10 Replies

Rheumatologist refuse to believe I have PMR.

They choose not to provide me any more prednisone. I have been off for a week now. Many of the physical symptoms have returned since being off. I was hoping...

They choose not to provide me any more prednisone. I have been off for a week no...

SMH4CRNA

•1 year ago

18 Replies

PMR and fibro

First time poster here so please be gentle 😁.I have been suffering with shoulder, elbow and wrist pain, neck and hip pain and sometimes pain that goes like a...

First time poster here so please be gentle 😁.I have been suffering with shoulde...

juliegeorge

•1 year ago

27 Replies

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PMR TO GCA OR WAS IT ALWAYS GCA? UP PRED?

As some know I've been stuck on my bed the last 3 weeks with huge muscle spasms in the back and excruciating back pain in general. Well this past week the...

As some know I've been stuck on my bed the last 3 weeks with huge muscle spasms...

Missus835

•1 year ago

10 Replies

Finished pred

After a long 8 years and 3 months with PMR, a week ago I weaned off prednisone. I had been at 1mg for months then went to 1/2 then alternate days. I have had a...

After a long 8 years and 3 months with PMR, a week ago I weaned off prednisone. ...

Fimckenz

•1 year ago

20 Replies

Heading into several stressful weeks, should I hold steady?

I live with two other housemates who are 67 & 69 y.o., I'm 60. The 67 y.o. housemate is having major back surgery where they will be widening his spinal canal...

I live with two other housemates who are 67 & 69 y.o., I'm 60. The 67 y.o. house...

perceptual63

•1 year ago

41 Replies

shingles and acyclovir

Hi lovely people i am on asking for your advice yet again.My mum has GCA and on her 2nd week tapering down to 17.5mg pred.She had been doing well and feeling...

Hi lovely people i am on asking for your advice yet again.My mum has GCA and on ...

Buchanan16

•1 year ago

4 Replies

Advice please

I have been following the 5 week taper method for the last 3 months. What happens when you get to 1/2 mg every day do I just stop.

I have been following the 5 week taper method for the last 3 months. What happen...

Deneez99

•1 year ago

9 Replies

Pain in left knee and right forearm

I'm getting quite bad pain in left knee and right forearm ordinary pain killers don't touch it it's very hard to get a face to face with a doc over here on the...

I'm getting quite bad pain in left knee and right forearm ordinary pain killers ...

Caulkhead63

•1 year ago

10 Replies

PMR and CK

I have GCA but am now off prednisone completely. However, am now having pain: shoulder, knees, thighs. Rheumy watching and sorting out PMR vs. medication...

I have GCA but am now off prednisone completely. However, am now having pain: sh...

Cobalt2sister

•1 year ago

24 Replies

dropped again 5 to 2.5 prednisone. Excpet for my bad middle finger, feeling great

Did not stay at 5 long, maybe a week. Tested the waters at 2.5 last 3 days and honesty the 5 to 2.5 transition was mostly painless vs going from 7.5 to 5. a...

Did not stay at 5 long, maybe a week. Tested the waters at 2.5 last 3 days and...

sdowney717

•1 year ago

10 Replies

Recently diagnosed GCA

After a bad day with severe headaches and sight loss I ended up at the Hospital emergency eye clinic. Diagnosed the next day with GSA and very efficiently put...

After a bad day with severe headaches and sight loss I ended up at the Hospital ...

Doublef

•1 year ago

20 Replies

pill splitting

hi everyone. I have noticed some people take Pred in .25mg increments. Is it possible to split a 1mg pred pill into 4. Would make tapering easier for me I...

hi everyone. I have noticed some people take Pred in .25mg increments. Is it p...

Storm-boy

•1 year ago

19 Replies

TO INCREASE PRED OR NOT? 3 WEEKS IN BED.

I have been incapacitated due to back muscle spasms and low back pain for well over 2 months. Mostly on the bed for 3 weeks, but able to use walker and now sit...

I have been incapacitated due to back muscle spasms and low back pain for well o...

Missus835

•1 year ago

10 Replies

wrong diagnosis

Hi Has anyone here been wrongly diagnosed when told they have PMR ? And if so , what was the auto immune disease you have ? I know they can mimic each other...

Hi Has anyone here been wrongly diagnosed when told they have PMR ? And if so...

TedTheMaineCoon

•1 year ago

40 Replies

Lansoprazole - reducing dose

Hi I have been on lansprazole 30mg since starting steroids 3 years ago. I am now down to 2mg steroids and want to reduce ppi as I have started having problems...

Hi I have been on lansprazole 30mg since starting steroids 3 years ago. I am now...

Moonriver65

•1 year ago

37 Replies

Queasiness from Ozempic

As a result of taking steroids for PMR, my prediabetes became diabetes. After that and vacations where I overdid it, my A1c. soared to 8. Doc put me on...

As a result of taking steroids for PMR, my prediabetes became diabetes. After ...

Merryfield

•1 year ago

40 Replies

Help interpreting summary of DEXA scan, please?

I had a DEXA san in January 2022, 18 months after being diagnosed and starting on Pred. By then my usual GP was away. I was just told I had osteopenia. I’m...

I had a DEXA san in January 2022, 18 months after being diagnosed and starting o...

ImC_

•1 year ago

16 Replies

Anybody have bad reaction across face and down behind ears to their glasses and mask elastic?

GP, Specsavers not heard of this. Nickel allergy in arms produces rash. Don't have rash. Had a pr of Titanium made up. Same reaction. Consulted a GP...

GP, Specsavers not heard of this. Nickel allergy in arms produces rash. Don't ha...

DiamondCake

•1 year ago

14 Replies

split dose at 5 1/2 mg

Twopies

•1 year ago

20 Replies

The search for reasons

Hi I haven't posted anything for ages and on the whole since my hip replacement, infection and second replacement I have been doing well. PMR symptoms minimal,...

Hi I haven't posted anything for ages and on the whole since my hip replacement,...

Hiibilly

•1 year ago

5 Replies

Pet Scan

My rheumatologist has booked me in for a pet scan. Has anyone had this procedure? If so can you give me a bit of advice on what to expect. Thanks

My rheumatologist has booked me in for a pet scan. Has anyone had this procedur...

Bonsaigirl

•1 year ago

9 Replies

1mg prednisolone….. 0mg

hi I have managed to get down to taking just 1mg pred from 20mg over 18mths . Now I am taking just 1mg a few times a week… when can I stop completely and how...

hi I have managed to get down to taking just 1mg pred from 20mg over 18mths . No...

Tayzee

•1 year ago

7 Replies

In this together!

Thank you Thank you to the lovely people I met yesterday in Ilkley - your advice means so much, your support means so much, I learned so much and as I drove...

Thank you Thank you to the lovely people I met yesterday in Ilkley - your advice...

UnicornDancer

•1 year ago

4 Replies

cataract op and reducing pred

I’ve been following Dorset Ladies tapering recommendation dropping 1mg approximately every month. 30 May - reduced from 12mg pred to 11mg. Returned on 6 June...

I’ve been following Dorset Ladies tapering recommendation dropping 1mg approxima...

Lclmlbls

•1 year ago

12 Replies

Curious about good spell

Hello knowledgeable people, I am really curious about one aspect of my PMR , which I have had for 3 years, and am managing with advice from this site and...

Hello knowledgeable people, I am really curious about one aspect of my PMR , whi...

Ann1A

•1 year ago

43 Replies

It can be done

I know a lot of people on here are struggling but I thought I'd just post, especially for new members on here, that it is possible to be off pred within 18...

I know a lot of people on here are struggling but I thought I'd just post, espec...

kalgoorlie

•1 year ago

23 Replies

tapering problem

hi, I am hoping for some advice I have PMR and been on prednisolone for approx 18 months. After a few ups and downs with tapering from15 gms originally, I...

hi, I am hoping for some advice I have PMR and been on prednisolone for approx ...

Sukian

•1 year ago

22 Replies

hyperbaric chamber as treatment for PMR? Marine collagen peptides anyone ?

I met a lady shopping today.. she told me both she and her friend both in their 60’s have terrible pains in the arms and shoulders. She can’t bear to move them...

I met a lady shopping today.. she told me both she and her friend both in their ...

Seekingasolution

•1 year ago

37 Replies

? Increase Pred dose

PMR diagnosed over three years ago. Fortunate to not have big flares and after very slow tapering am at 2.25mg. I have at least six of the symptoms of adrenal...

PMR diagnosed over three years ago. Fortunate to not have big flares and after v...

Francesbarbara

•1 year ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

Sore Throat

Rheumatologist refuse to believe I have PMR.

PMR and fibro

PMR TO GCA OR WAS IT ALWAYS GCA? UP PRED?

Finished pred

Heading into several stressful weeks, should I hold steady?

shingles and acyclovir

Advice please

Pain in left knee and right forearm

PMR and CK

dropped again 5 to 2.5 prednisone. Excpet for my bad middle finger, feeling great

Recently diagnosed GCA

pill splitting

TO INCREASE PRED OR NOT? 3 WEEKS IN BED.

wrong diagnosis

Lansoprazole - reducing dose

Queasiness from Ozempic

Help interpreting summary of DEXA scan, please?

Anybody have bad reaction across face and down behind ears to their glasses and mask elastic?

split dose at 5 1/2 mg

The search for reasons

Pet Scan

1mg prednisolone….. 0mg

In this together!

cataract op and reducing pred

Curious about good spell

It can be done

tapering problem

hyperbaric chamber as treatment for PMR? Marine collagen peptides anyone ?

? Increase Pred dose

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