Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2023

looking for a second opinion

Good morning , Just over one year in starting at 15mg and now on 5mg , which I guess is a fairly quick taper ? Have had good attention from GP and 3 visits...

Good morning , Just over one year in starting at 15mg and now on 5mg , which I...

5goFlotilla

•10 months ago

10 Replies

Lost 3 stones in weight , put on 2 stones - urgent action required.

Hi, the only upside to the awful 3 and a half/ 4 months of having undiagnosed PMR was I quickly and ( very worryingly at the time ) started to lose weight....

Hi, the only upside to the awful 3 and a half/ 4 months of having undiagnosed PM...

Animalover65

•10 months ago

12 Replies

Total Hip Replacement tomorrow - yay!

So having been in a lot of pain with my right hip since last September and staving it off with injections, finally I am going into hospital tomorrow for a...

So having been in a lot of pain with my right hip since last September and stavi...

SusyTe

•10 months ago

31 Replies

Want to take advantage of all our features? Just log in!

smell & taste

I was just wondering if anyone has lost their sense of smell and taste due to PMR ? I did have covid back in March , but around the same time this flare up...

I was just wondering if anyone has lost their sense of smell and taste due to ...

TedTheMaineCoon

•10 months ago

10 Replies

I think it was a GCA Flare

Hello community, I think what I've had is a very long flare. Is it possible for a flare last 2 to 3 months? Or it could be that I was too low on prednisone and...

Hello community, I think what I've had is a very long flare. Is it possible for ...

potterylady

•10 months ago

11 Replies

Confused of Norfolk

I keep reading posts about members getting problems with their hands, wrists, arms, along with questions about nerve problems or carpal tunnel syndrome....

I keep reading posts about members getting problems with their hands, wrists, ar...

tempusfugi

•10 months ago

10 Replies

driving

does anyone on here still drive with PMR ?

TedTheMaineCoon

•10 months ago

48 Replies

Carers

Hi Does anyone have help from carers for their PMR ? As I was thinking of getting help with housework .

Hi Does anyone have help from carers for their PMR ? As I was thinking of gett...

TedTheMaineCoon

•10 months ago

42 Replies

Covid and loss of smell and taste

hi all I am taking Paxlovid started this morning Thank you all for the encouragement. My husband is taking it also. I will restart my prednisone tomorrow....

hi all I am taking Paxlovid started this morning Thank you all for the encourag...

bluegirl7

•10 months ago

13 Replies

Can PMR make you feel so unwell ?

my whole body feels like it’s being attacked . Is this normal ? I’m new to PMR ! I’m fatigued all the time . Feel like I’m not alive inside ! By nature I’m...

my whole body feels like it’s being attacked . Is this normal ? I’m new to PMR !...

TedTheMaineCoon

•10 months ago

41 Replies

Is it possible to relapse after 9 months of being well from PMR

I had been diagnosed in September 2020, after 2 years of being on Pred it all stopped and I have been well without medication for 9 months, I have started to...

I had been diagnosed in September 2020, after 2 years of being on Pred it all st...

Littlejan22

•10 months ago

5 Replies

Aging during the PMR/GCA journey. How to know if we can ever recover our pre-illness levels of energy and fitness

I've learned from this extremely well informed and very helpful group that this journey could well last 6 or more years. These are the years when even the vast...

I've learned from this extremely well informed and very helpful group that this ...

Dochaz

•10 months ago

42 Replies

Merchandise!!

Hi all - after reading some posts I thought I would explore Amazon for merchandise and I have just bought a tee shirt and lapel badge - people are starting to...

Hi all - after reading some posts I thought I would explore Amazon for merchandi...

UnicornDancer

•10 months ago

14 Replies

update on Steroid Injection.

Just an update on my last post. As I mentioned I had the X-ray and scan done privately as there is a long wait for scans on NHS. They were both done and the...

Just an update on my last post. As I mentioned I had the X-ray and scan done pri...

Macas

•10 months ago

3 Replies

The Truth about Inflammation!

Article from the Guardian with contributors like Prof Spector. ( Still working on the cures !!)...

Article from the Guardian with contributors like Prof Spector. ( Still working...

Seekingasolution

•10 months ago

17 Replies

return of throbbing after stopping prednisolone

Diagnosed with temporal arteritis Nov 2021. Finally off prednisolone 2 weeks ago. Seem to be getting worse throbbing than when I started. 1. Is this...

Diagnosed with temporal arteritis Nov 2021. Finally off prednisolone 2 weeks a...

AlamedaCounty

•10 months ago

3 Replies

DSNS method?

I would like to know what this is?

Thiago1396

•10 months ago

7 Replies

plenadren

Hi is anyone else on plenadren for adrenal insufficiency . I get really tearful a lot and feel really low . It’s my first week taken them and wonder if anyone...

Hi is anyone else on plenadren for adrenal insufficiency . I get really tearful...

Sofabound

•10 months ago

5 Replies

NICE maths

•Reduce the dose of prednisolone slowly when symptoms are fully controlled. A suggested schedule for reducing prednisolone is provided below, but smaller...

•Reduce the dose of prednisolone slowly when symptoms are fully controlled. A su...

Mayadill

•10 months ago

8 Replies

Does GCA Recur ?

Hello .I was diagnosed in December 2017 with GCA with a positive biopsy. After taking Prednisone only, and a few minor flares, I have slowly tapered down and...

Hello .I was diagnosed in December 2017 with GCA with a positive biopsy. After ...

Abbeys

•10 months ago

10 Replies

HELP needed please

Hi all, As per my post on Thursday I have had my bloods and X-rays done should get my results next week. The new Rheumy has already suggested I go on...

Hi all, As per my post on Thursday I have had my bloods and X-rays done should ...

Wonderfullifeandmore

•10 months ago

15 Replies

Hand muscle loss and pain

Have GCAPMR and paroxysmal AFib. Down to 5.5mg pred and taking Atenolol beta blocker. 7 weeks ago I had what felt like signs of Carpal tunnel syndrome and...

Have GCAPMR and paroxysmal AFib. Down to 5.5mg pred and taking Atenolol beta blo...

Steal

•10 months ago

4 Replies

Can I temporarily increase my Pred for a few days?

I have had PMR since Jan 2021 - started on 20mg, reached 4mg 2 weeks ago, slowly tapering using the DSNS method. For the last few days I have had shoulder...

I have had PMR since Jan 2021 - started on 20mg, reached 4mg 2 weeks ago, slowly...

Workingcocker

•10 months ago

4 Replies

List of rheumatologists

Is it worth considering (or does it already exist) a list of rheumatologists and where they are in the country? I have noticed that people often refere to...

Is it worth considering (or does it already exist) a list of rheumatologists and...

marionofnorwich

•10 months ago

8 Replies

Info re drug interactions with Paxlovid

https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/ritonavir-boosted-nirmatrelvir--paxlovid-/paxlovid-drug-drug-int

https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-an...

bluegirl7

•10 months ago

Be the first to reply

Problem with different make of prednisolone

Hello all, I have been taking prednisolone now since December 2022 and my chemist has now given me a different brand, I am taking 13 1/2 mg. trying to taper...

Hello all, I have been taking prednisolone now since December 2022 and my chemis...

mychilddoll

•10 months ago

80 Replies

Paxlovid for Covid if you have PMR

hi all. Living in France for 5 months didn’t think I would get Covid here but I did. I think it came with our guests on the plane. But in any case I have...

hi all. Living in France for 5 months didn’t think I would get Covid here but I ...

bluegirl7

•10 months ago

13 Replies

prednisolone

What would the affects on you body if you stayed on a very low dose of 3mg steroids instead of going on any other drug

What would the affects on you body if you stayed on a very low dose of 3mg stero...

Sheenalady

•10 months ago

11 Replies

Help!

Feel like I’ve hit rock bottom again last few weeks. After eventually tapering off of Pred June last year, I believe I told you lovely people I started getting...

Feel like I’ve hit rock bottom again last few weeks. After eventually tapering o...

Stifffingers

•10 months ago

31 Replies

Methotrexate and tiredness

I was started on Methotrexate 3 weeks ago. My Rheumatologist said in my consultation it was up to me but people die earlier on pred than metho!! He then sent...

I was started on Methotrexate 3 weeks ago. My Rheumatologist said in my consulta...

RachelJDH

•10 months ago

29 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

looking for a second opinion

Lost 3 stones in weight , put on 2 stones - urgent action required.

Total Hip Replacement tomorrow - yay!

smell & taste

I think it was a GCA Flare

Confused of Norfolk

driving

Carers

Covid and loss of smell and taste

Can PMR make you feel so unwell ?

Is it possible to relapse after 9 months of being well from PMR

Aging during the PMR/GCA journey. How to know if we can ever recover our pre-illness levels of energy and fitness

Merchandise!!

update on Steroid Injection.

The Truth about Inflammation!

return of throbbing after stopping prednisolone

DSNS method?

plenadren

NICE maths

Does GCA Recur ?

HELP needed please

Hand muscle loss and pain

Can I temporarily increase my Pred for a few days?

List of rheumatologists

Info re drug interactions with Paxlovid

Problem with different make of prednisolone

Paxlovid for Covid if you have PMR

prednisolone

Help!

Methotrexate and tiredness

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive