Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2023

CRP going up?

Recently in general all going ok. Was put on mtx about 10-12 weeks ago, didn’t have any obvious adverse effects other than a bit of hair loss, but doing...

Recently in general all going ok. Was put on mtx about 10-12 weeks ago, didn’t h...

Cfmad298601

•10 months ago

8 Replies

Ankylosing spondylitis?

Hi, as I posted earlier my Dr had diagnosed mevwith PMR but after being on high prednisone (started on 30 mg, now on 22 mg with 1mg tsper every 3 days) with...

Hi, as I posted earlier my Dr had diagnosed mevwith PMR but after being on high ...

Monkey321

•10 months ago

30 Replies

walking

With PMR does anyone else’s find that their walking becomes slower over time ?

With PMR does anyone else’s find that their walking becomes slower over time ? ...

TedTheMaineCoon

•10 months ago

29 Replies

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Insufferable smirk of triumph

I have a manual thermostat. Why is it so freaking hot in here? Radiators on? Where is the thermostat? Oh…Behind a heavy wood bookcase. Drop must have...

I have a manual thermostat. Why is it so freaking hot in here? Radiators on? ...

Mayadill

•10 months ago

8 Replies

Chronic fatigue/pain

Thankyou all for your very informative, supportive messages and links. I have contacted GP who was initially going to increase dose of Pred before then...

Thankyou all for your very informative, supportive messages and links. I have c...

Scarysit

•10 months ago

5 Replies

tappering

Hi I’ve had pmr for approx 9 years down to half a mg a day for last 3months . Can I stop taking or should I tapper some more . Advice please

Hi I’ve had pmr for approx 9 years down to half a mg a day for last 3months . Ca...

Sufferingpoly

•10 months ago

10 Replies

From 5mg of pred to 40mg 🙄

I haven’t posted in a while but thought I’d share my news following my latest rheumatologist appt and ask for your thoughts. I’ve been chugging along reducing...

I haven’t posted in a while but thought I’d share my news following my latest rh...

Rebsy

•10 months ago

41 Replies

Hi Yet Another Update

Good morning, yes another update quick recap, awaiting blood and X-ray results before staring MTX. Yesterday the rheumy’s secretary emailed me as follows....

Good morning, yes another update quick recap, awaiting blood and X-ray results b...

Wonderfullifeandmore

•10 months ago

20 Replies

A positive move

I saw a rheumatologist yesterday and thanks to all the information gained from this site I am now taking prednisolone. I wanted a two week trial and he wanted...

I saw a rheumatologist yesterday and thanks to all the information gained from t...

Nanatoo

•10 months ago

19 Replies

adrenal crisis 😢

Back again! So mum diagnosed with uti yesterday - not unwell with that BUT today full on adrenal crisis - temperature, weakness, vomiting, very low BP...

Back again! So mum diagnosed with uti yesterday - not unwell with that BUT tod...

RT18

•10 months ago

4 Replies

thinners with Atrial FIbrulation

wondering best time to take them ,as I now take them a tea time. Now realising I feel a little better after taking them.thinking of taking in morning to see...

wondering best time to take them ,as I now take them a tea time. Now realising I...

Ronzy

•10 months ago

5 Replies

Dropping to 5mg prednisone, just 5 in the AM. And hand xrays show mild osteoarthritis

I do also now have an orthopedic hand specialist appointment on Sept 2, my PIP middle finger joint right hand hurts a lot and cannot straighten it out all the...

I do also now have an orthopedic hand specialist appointment on Sept 2, my PIP m...

sdowney717

•10 months ago

11 Replies

Diagnosed yesterday with GSA

Started with severe temple headaches on Sunday, lost eyesight for a couple of minutes. Doctor sent me to accident and emergency , diagnosed with GSA and put...

Started with severe temple headaches on Sunday, lost eyesight for a couple of m...

Doublef

•10 months ago

11 Replies

chronic fatigue, pain in hips and thighs

help! I was diagnosed with PMR in March 23 after months of endless trips to GP with what I now know were symptoms. Initially started on 15mg pred, increased...

help! I was diagnosed with PMR in March 23 after months of endless trips to GP ...

Scarysit

•10 months ago

17 Replies

Magnesium supplement - how much per day?

Until a few days ago I was taking soluble Magnellon 300 mg each day in the early evening, after food. I've been doing this since PMR diagnosis in August...

Until a few days ago I was taking soluble Magnellon 300 mg each day in the early...

Pr0jection

•10 months ago

17 Replies

Actemra problems.

My husband has been on Actemra for about two months and hasn't had any of the side affects that have been mentioned so far. However, he is ta king it because...

My husband has been on Actemra for about two months and hasn't had any of the si...

Wilson1952

•10 months ago

7 Replies

I had an appointment a few weeks ago with a rheumatologist, who I was referred to . Will I see or hear from her again ?

The rheumatologist asked so many questions . I can’t remember a lot about the appointment as I was in the throes of a flare & very tired . Nearly falling...

The rheumatologist asked so many questions . I can’t remember a lot about the ap...

TedTheMaineCoon

•10 months ago

19 Replies

Alendronic Acid

It has been recommended that I take Alendronic Acid to protect my bones whilst taking Prednisone as I now have Osteoporosis. To be honest given the potential...

It has been recommended that I take Alendronic Acid to protect my bones whilst t...

Stellazero

•10 months ago

19 Replies

2mg is this normal

please can anyone tell me if what I’m suffering is normal in withdrawal ; I am at week 4 of reducing from 2.5mg to 2mg the fatigue is so debilitating I am no...

please can anyone tell me if what I’m suffering is normal in withdrawal ; I am...

Maggie1313

•10 months ago

20 Replies

Hi GCA and polymyalgia

Hi, it took a while for me to be diagnosed with GCA. I had never heard of it before and it was February 2022. Once diagnosed and confirmed with a biopsy my...

Hi, it took a while for me to be diagnosed with GCA. I had never heard of it bef...

Strider68

•10 months ago

10 Replies

Change of brand or coincidence?

I am on my 3rd day of taking a different brand of pred. I am noticing increasing stiffness in my hips and neck. I have PMR and GCA and I'm down to 3.5mg. The...

I am on my 3rd day of taking a different brand of pred. I am noticing increasing...

Broseley

•10 months ago

44 Replies

Unidentified pain - PMR or not

Golf-1

•10 months ago

4 Replies

zoom on 9th September

I saw a post about members being able to register to join a zoom meeting on 9th September. Unfortunately I cannot find the details and my members invitation...

I saw a post about members being able to register to join a zoom meeting on 9th ...

Lclmlbls

•10 months ago

2 Replies

Covid jab and return of PMR symptoms

I had successfully reduced to 3mg after a year of taking pred. A week after having the covid jab as I was supposedly vulnerable my PMR symptoms are bad again....

I had successfully reduced to 3mg after a year of taking pred. A week after havi...

simps999

•10 months ago

23 Replies

Struggling with PMR and Pred

Hello, am newish in the group. Just updated my bio with my story and how I ended up where I am. I have had PMR like symptoms since around 2003, that seem...

Hello, am newish in the group. Just updated my bio with my story and how I ende...

Gimme

•10 months ago

69 Replies

Diet and GCA

I have recently found this wonderful forum, it's so full of information I wish I had seen it before. I thought I would post this in case it is interesting to...

I have recently found this wonderful forum, it's so full of information I wish I...

Toolie2

•10 months ago

24 Replies

Arteries in the head

If having GCA means the arteries in the head have "furred up", when one stops taking predisolone does it mean they are completely back to what they were before...

If having GCA means the arteries in the head have "furred up", when one stops ta...

prunus

•10 months ago

13 Replies

Heart rhythm workup. Increase prednisone?

I have been tapering down to 7 1/2 from 7 3/4. Last week I had an episode a very fast pulse and extremely high blood pressure and went to the hospital. Of...

I have been tapering down to 7 1/2 from 7 3/4. Last week I had an episode a ver...

Karenjaninaz

•10 months ago

5 Replies

Please tell me how to get my emails

please tell me how to get my emails

Uglow

•10 months ago

2 Replies

One week on

hi everybody, tomorrow it is a week since I saw my new Rheumy who diagnosed Inflammatory arthritis gave me a methylprednisolone injection and ordered lots of...

hi everybody, tomorrow it is a week since I saw my new Rheumy who diagnosed Infl...

Wonderfullifeandmore

•10 months ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

CRP going up?

Ankylosing spondylitis?

walking

Insufferable smirk of triumph

Chronic fatigue/pain

tappering

From 5mg of pred to 40mg 🙄

Hi Yet Another Update

A positive move

adrenal crisis 😢

thinners with Atrial FIbrulation

Dropping to 5mg prednisone, just 5 in the AM. And hand xrays show mild osteoarthritis

Diagnosed yesterday with GSA

chronic fatigue, pain in hips and thighs

Magnesium supplement - how much per day?

Actemra problems.

I had an appointment a few weeks ago with a rheumatologist, who I was referred to . Will I see or hear from her again ?

Alendronic Acid

2mg is this normal

Hi GCA and polymyalgia

Change of brand or coincidence?

Unidentified pain - PMR or not

zoom on 9th September

Covid jab and return of PMR symptoms

Struggling with PMR and Pred

Diet and GCA

Arteries in the head

Heart rhythm workup. Increase prednisone?

Please tell me how to get my emails

One week on

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