Stopping Alendronic acid: Currently down to 2mg... - PMRGCAuk

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Stopping Alendronic acid

BiteyDelano profile image
6 Replies

Currently down to 2mg Pred, after 5 years. Should I stop taking my weekly Alendronic acid?Thanks for your input!

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BiteyDelano
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PMRpro profile image
PMRproAmbassador

Have you had a dexascan at any time? How long have you been on AA?

It depends - some doctors feel that low doses of pred aren't a risk, others prefer it to be continued. But if you have been on it 3 years or more, you are due a drug holiday anyway.

BiteyDelano profile image
BiteyDelano in reply to PMRpro

Yes, I had a Dexa scan c.12 months ago (with good results). I have been on Pred since diagnosis in 2018. I think it's drug holiday time!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

See from previous post of 2 years ago, you've been on AA since diagnosis - so 5 years.

It is time for a break, but you need to discuss with doctors - and as PMRpro says depends on state of bone density as to whether it is a complete stop or just a rest from it.

BiteyDelano profile image
BiteyDelano in reply to DorsetLady

Thanks DorsetLady - tbh I've somewhat lost faith in NHS rhuemies

Exflex profile image
Exflex

I was on Risedronate and stopped at around 2mg. Now 0.75mg going on 0.5mg. Still waiting a DEXA scan but informed months ago there’s a long waiting list.

BiteyDelano profile image
BiteyDelano in reply to Exflex

Yes, a good DEXA scan results is a must first

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