Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,474 members • 38,435 posts

All posts for July 2023

Groups more susceptible to PMR?

I recognise that this will be of little interest to most but I wondered if there had been any research into which groups were more prone to PMR than others....

I recognise that this will be of little interest to most but I wondered if there...

51Highland

•11 months ago

134 Replies

Biphosphonates Questions

I’m on my second go-around for GCA. I had GCA/PMR in 2017. After almost 5 years and tapering VERY slowly got off of prednisone for about year when the GCA...

I’m on my second go-around for GCA. I had GCA/PMR in 2017. After almost 5 yea...

Pamk1949

•11 months ago

9 Replies

Steroids and Diabetes type 2

since I’ve been on steroids for PMR, for just over 2 months, my blood sugar tests have increased from between 7 to 10, taken 3+ hours after meals, to between...

since I’ve been on steroids for PMR, for just over 2 months, my blood sugar test...

Thiago1396

•11 months ago

13 Replies

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GCA, Pred tapering and shoulder pain

I was diagnosed with GCA in April 2022 and have been up and down on Pred. Early last month I dropped from 10mg down to 9mg and since then I have had really...

I was diagnosed with GCA in April 2022 and have been up and down on Pred. Early ...

Hazeleyes48

•11 months ago

13 Replies

Appointment update

Just got home from my appointment that I was dreading with my Rheumatologist. It was in a brand new building down at the Royal Sussex County Hospital in...

Just got home from my appointment that I was dreading with my Rheumatologist. I...

Bramble2000

•11 months ago

3 Replies

Follow up from my post about cellulitis

Sorry should have said that I am on 10 mg of Pred.

Dobermanlover

•11 months ago

1 Reply

CELLULITIS

Has anyone had cellulitis? I have had it for just over a week and have just completed a 7 day course of Flucloxacillin. I did not see a doctor - just had to...

Has anyone had cellulitis? I have had it for just over a week and have just com...

Dobermanlover

•11 months ago

21 Replies

Everything follows from the starting-dose?

Found this from Pro in an earlier thread: Personally I think that paper by Cimmino has led to a LOT of problems in managing PMR. Before it was done the...

Found this from Pro in an earlier thread: Personally I think that paper by Cimm...

Mayadill

•11 months ago

31 Replies

Vitamin Supplements for PMR

I have had PMR since February 2023, diagnosed end of April, started on 15mg Pred, increased to 20mg to get fully on top of pain. Now tapering, down to 17.5mg...

I have had PMR since February 2023, diagnosed end of April, started on 15mg Pred...

Thiago1396

•11 months ago

16 Replies

End in sight?

I've just had a video appointment with my rheumatologist. I'd already reduced pred to 0.5 mg per day. She advised me to see out the week on that dose and then...

I've just had a video appointment with my rheumatologist. I'd already reduced pr...

Marijo1951

•11 months ago

26 Replies

Chickenpox and immune suppressed

I take predisilone and Tocilizumab for GCA although Pred. now down to 3mg. So I am due to look after my 2 year old Grandson tomorrow for my daughters birthday...

I take predisilone and Tocilizumab for GCA although Pred. now down to 3mg. So I...

christine2715

•11 months ago

25 Replies

PMR 15 Years On

Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of...

Has anybody experienced PMR 15 years after first diagnosis. Have tapered properl...

Pred5

•11 months ago

10 Replies

movies1578

hi just sum advice was on 15mg steroids iam now down to 1mg pain in muscle first thing in morning as day goes on get better is there any pain medication I can...

hi just sum advice was on 15mg steroids iam now down to 1mg pain in muscle first...

Movies5178

•11 months ago

6 Replies

thrush……again

For the past three months I’ve been trying to get rid of a bad taste in my mouth. The roof of my mouth feels like I’ve burned my mouth on a too hot...

For the past three months I’ve been trying to get rid of a bad taste in my ...

Mstiles

•11 months ago

19 Replies

Taking your blood pressure correctly

This arrived in my inbox today and I thought it should be posted as there are often discussions about white coat syndrome and BP measurements. They are a bit...

This arrived in my inbox today and I thought it should be posted as there are of...

PMRpro

Ambassador•11 months ago

49 Replies

overheating and PMR

I have had polymyalgia for 18 months, and at the beginning, there was a thought that I was developing GCA. However, the rheumy discounted this and after...

I have had polymyalgia for 18 months, and at the beginning, there was a thought...

Stargiver

•11 months ago

11 Replies

Cataracts & GCA

I was diagnosed with GCA in January this year & currently on 20 mg Pred - trying to taper down. I wear glasses & was told by my Optician in Oct last year...

I was diagnosed with GCA in January this year & currently on 20 mg Pred - trying...

Janeval

•11 months ago

83 Replies

Extreme pelvic area pain when over extending

eg if I twist my leg whilst walking or perhaps have a fall whilst hiking or other activity I might twist my leg and it causes extreme pain in the hip area. I...

eg if I twist my leg whilst walking or perhaps have a fall whilst hiking or othe...

fast_peddler

•11 months ago

15 Replies

Hip pain

Hi With PMR you get or can get pelvic pain . which I do . However since weaning off pred , I’ve been getting pain in right side of lumber area and right...

Hi With PMR you get or can get pelvic pain . which I do . However since weani...

TedTheMaineCoon

•11 months ago

13 Replies

Thyroid

My Free T4 is normal, but my TSH has risen quickly and is now 13.5. Instead of feeling sluggish, like I'd think I would with hypothyroidism, I'm super nervous...

My Free T4 is normal, but my TSH has risen quickly and is now 13.5. Instead of f...

ScaredDcat

•11 months ago

5 Replies

Chronic inflammation

I have had chronic inflammation since I was first diagnosed with PMR. My PMR is in remission and I know that because despite the fact that I have a lot of...

I have had chronic inflammation since I was first diagnosed with PMR. My PMR is ...

Amkoffee

•11 months ago

6 Replies

Adrenal crisis experiences & prevention please.

After witnessing mum’s full on adrenal crisis - unconscious for 90mins - we are thankfully now back home. I have emergency hydrocortisone and packs to read...

After witnessing mum’s full on adrenal crisis - unconscious for 90mins - we are ...

RT18

•11 months ago

8 Replies

TRURO SUPPORT GROUP

Our monthly meeting is on Monday 10th July at Truro Golf Club, Treliske, Truro at 2-4pm. We are a very relaxed, friendly group & you would be most welcome to...

Our monthly meeting is on Monday 10th July at Truro Golf Club, Treliske, Truro ...

Pollyanna16

•11 months ago

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moving pain

I am on my 3rd day of prednisolone, 20 mg after being diagnosed with pmr. Although I am experiencing less pain and stiffness than before the pain seems to...

I am on my 3rd day of prednisolone, 20 mg after being diagnosed with pmr. Alth...

Nanatoo

•11 months ago

9 Replies

Could this be PMR.?

I haven’t posted any thing for months but lately I’ve been feeling quite grim. My GCA after about 3 years seems to be in remission and all seemed relatively...

I haven’t posted any thing for months but lately I’ve been feeling quite grim. ...

Jane-s

•11 months ago

7 Replies

GCA or not

Hello, I posted last month about some head pain. After seeing a neurologist, who could not explain what may be going on to my Rhumy thinking it’s not a GCA...

Hello, I posted last month about some head pain. After seeing a neurologist, who...

Plains

•11 months ago

35 Replies

no energy most of the time

any idea how to boost a little 🥲 🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀

Ronzy

•11 months ago

24 Replies

Is this PMR?

Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm...

Hello I'm new to this site and to the world of PMR. Hoping to get some guidanc...

Evie1977

•11 months ago

14 Replies

SWOLLEN RIB CAGE

This past week I noticed an odd uncomfortable feeling below the left cage, sensation of restriction and low level pain. It comes and goes and I can't yet...

This past week I noticed an odd uncomfortable feeling below the left cage, sensa...

Bennijax

•11 months ago

12 Replies

Steroid before or after operation

I have monthly Depomedrone injections for PMR..I'm due to have my gallbladder removed next month, three days after my injection will be due. Should I have it...

I have monthly Depomedrone injections for PMR..I'm due to have my gallbladder re...

Countrykitten

•11 months ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

Groups more susceptible to PMR?

Biphosphonates Questions

Steroids and Diabetes type 2

GCA, Pred tapering and shoulder pain

Appointment update

Follow up from my post about cellulitis

CELLULITIS

Everything follows from the starting-dose?

Vitamin Supplements for PMR

End in sight?

Chickenpox and immune suppressed

PMR 15 Years On

movies1578

thrush……again

Taking your blood pressure correctly

overheating and PMR

Cataracts & GCA

Extreme pelvic area pain when over extending

Hip pain

Thyroid

Chronic inflammation

Adrenal crisis experiences & prevention please.

TRURO SUPPORT GROUP

moving pain

Could this be PMR.?

GCA or not

no energy most of the time

Is this PMR?

SWOLLEN RIB CAGE

Steroid before or after operation

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