Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,235 posts

All posts for June 2023

unexplained bruising on arms and hands plus swelling

I am 77 and male. i was diagnosed with PMR 2019. Am currently reducing, for second time, from 15 mg pred now down to 6.5 using dsns. I have been out today in...

I am 77 and male. i was diagnosed with PMR 2019. Am currently reducing, for seco...

Pommygranny

•1 year ago

7 Replies

⁸Low Haemoglobin

My latest blood test showed low haemoglobin so my GP ordered a whole raft of additional tests to check B12, thyroid, etc as well as a stool test to check for...

My latest blood test showed low haemoglobin so my GP ordered a whole raft of add...

Queenie1901

•1 year ago

15 Replies

Aching and sore hands and feet

I've had PMR and GCA since 2018. I'm now at 3.5 mg prednisone. I've developed carpal tunnel - took up knitting and probably surf on my phone too much! Both...

I've had PMR and GCA since 2018. I'm now at 3.5 mg prednisone. I've developed ...

Viola1

•1 year ago

8 Replies

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Hospital Discharge

I have just been discharged from hospital, having been treated for pneumonia. While I was in hospital, the doctor changed my Pred dose from 4.5mg - which I’d...

I have just been discharged from hospital, having been treated for pneumonia. W...

Janann25

•1 year ago

16 Replies

Travel Insurance with GCA

Can anyone advise on where to go for Travel insurance now I have GCA please (nearly 5 months ago since diagnosis)? I already have to tell them about Cancer...

Can anyone advise on where to go for Travel insurance now I have GCA please (nea...

Janeval

•1 year ago

11 Replies

another infection!!

A mosquito bite became inflamed and angry-looking overnight. Went to GP , then sent to A and E. After blood tests it was decided to start with an antibiotic...

A mosquito bite became inflamed and angry-looking overnight. Went to GP , then s...

agingfeminist

•1 year ago

13 Replies

horrible taste in mouth, nothing tastes good

After looking in my mouth, my GP said, I think you have thrush. A dentist had said an X-ray showed no tooth infection was causing the bad taste. GP...

After looking in my mouth, my GP said, I think you have thrush. A dentist h...

Mstiles

•1 year ago

10 Replies

Is my Pred dose high enough or am I expecting too much!

This is my first post - following blood tests my GP thinks I have PMR and I have been on Pred for 30 days. I started on 15mg (21 days) and then it was...

This is my first post - following blood tests my GP thinks I have PMR and I have...

44blue

•1 year ago

40 Replies

Goal before reduce pred--low pain or no pain???

I am tapering but not sure what the goal is before I go down to the next level. NO pain, or just manageable pain? Thank you!

I am tapering but not sure what the goal is before I go down to the next level. ...

emmamom

•1 year ago

8 Replies

what do you think ?

Hi PMR peeps, I’m still at 4mg and wasn’t doing too bad, had just got back from Rhodes and my daughter & 2 grandchildren came to visit for a week ( both...

Hi PMR peeps, I’m still at 4mg and wasn’t doing too bad, had just got back from ...

jules1955

•1 year ago

6 Replies

adrenals kicking in

I am on 5mg for the last five weeks now getting lightheaded feelings and sweating is this my adrenals kicking in . Sometimes feeling shaky . I have been on...

I am on 5mg for the last five weeks now getting lightheaded feelings and sweatin...

Buster1610

•1 year ago

17 Replies

please can I have some advice

Hi everybody I am at my lowest following my rheumatologists advice. I have beeen on 5mg of pred daily but have a real burning in my upper back emailed my...

Hi everybody I am at my lowest following my rheumatologists advice. I have beee...

Wonderfullifeandmore

•1 year ago

13 Replies

Advice for hand pain

For the last week I’ve had pain at the base of my left thumb. It’s similar on my right hand but not nearly as sore. It has got worse as the week has gone on....

For the last week I’ve had pain at the base of my left thumb. It’s similar on my...

Callymac

•1 year ago

8 Replies

Methotrexate Update

I was prescribed MTX a year ago, about 18months into my PMR journey, I reluctantly followed my Rheumatologist’s instructions and in October reported back to...

I was prescribed MTX a year ago, about 18months into my PMR journey, I reluctant...

suelm

•1 year ago

9 Replies

skin problems

I am down to 5.5 pred and have started to get spots around my eyes and nose. I had problems with acne as a teenager but these are of a quite different nature....

I am down to 5.5 pred and have started to get spots around my eyes and nose. I h...

Elor

•1 year ago

4 Replies

dye used in a CT Kidney scan, triple phase BOTH,

I had a CT Kidney scan, triple phase BOTH with dye earlier this week. The two day following I experienced more inflammation pain than I have since starting...

I had a CT Kidney scan, triple phase BOTH with dye earlier this week. The two da...

Thiago1396

•1 year ago

7 Replies

Fatigue and muscle weakness

Just a quick question about the above. Over the last three or four days I have become more and more fatigued with a feeling of muscle weakness. I put this...

Just a quick question about the above. Over the last three or four days I have ...

Miserere

•1 year ago

37 Replies

Night time prednisone

In the US, I have been taking prednisone at night...trying for 2 AM as suggested, but finding insomnia of sorts. Recently taken at 1 AM, but even this which...

In the US, I have been taking prednisone at night...trying for 2 AM as suggested...

Joseph14612

•1 year ago

16 Replies

Teeth sensitivity, welling and PPi's

Questions: 1) Does anyone have acute sensitivity to cold in teeth after being on Pred? Ive been on Pred for 6 months and now down to 20mg. Also taking,...

Questions: 1) Does anyone have acute sensitivity to cold in teeth after being ...

Jbobby

•1 year ago

24 Replies

PMR or Fibromyalgia?

I have been told by drs that I have both PMR and FM. I am tapering my prednisone but am having a hard time determining if I have a FM or PMR flare. Do any of...

I have been told by drs that I have both PMR and FM. I am tapering my prednisone...

emmamom

•1 year ago

2 Replies

Can shaky hands and weak arms be part of dropping prednisolone.

Currently on a slow drop from 11mg to 10mg and feeling tired but no other problems apart from reflux.I started feeling a slight shake in one hand months...

Currently on a slow drop from 11mg to 10mg and feeling tired but no other proble...

Ebiker

•1 year ago

12 Replies

Trying to taper very slowly again , advice on changing pred time from night to morning.

Hi friends I’m doing Dorset Ladies Taper plan again , this has previously gotten me down to 3mg 3 years ago , recently had to increase dose to get through a...

Hi friends I’m doing Dorset Ladies Taper plan again , this has previously got...

Greensleeves

•1 year ago

85 Replies

Follow-up: ER Visit for Excruciating Back Spasms

On advice of my former Neurologist, I went into the ER on Wednesday past and sat for 4 hours. Could sit no longer due to the spasms from hip girdle to...

On advice of my former Neurologist, I went into the ER on Wednesday past and sat...

Missus835

•1 year ago

17 Replies

Flare after 2 year remission

hello there, I was diagnosed in2016 with GCA and PMR. I went into remossion and have been off Pre sine June 2021, One month ago I noticed a return of the...

hello there, I was diagnosed in2016 with GCA and PMR. I went into remossion an...

julianne3

•1 year ago

5 Replies

Uncertain PMR or EORA?

Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking,...

Good morning, My first visit to see the Rheumatologist referred by GP and takin...

Woollyback1

•1 year ago

2 Replies

Coping with extremes of temperature and pmr/gca

Hi, at 2mg of Pred I am taking things gradually and pacing myself, however I find the hot weather, ,particularly when combined with humidity has quite a...

Hi, at 2mg of Pred I am taking things gradually and pacing myself, however I fin...

Animalover65

•1 year ago

29 Replies

Prednisolone and COPD

Can you give me some advice regarding my husband. He is 81 and suffers from COPD and has home oxygen 24/7, He has been taking 5mg of prednisolone since last...

Can you give me some advice regarding my husband. He is 81 and suffers from CO...

Sunnymede

•1 year ago

1 Reply

Vision loss

I have reduced from 5mg to 4.5mg Prednisolone and my vision has become really bad.I have ended up in hospital as my blood pressure became high and chest pain...

I have reduced from 5mg to 4.5mg Prednisolone and my vision has become really ba...

Raewynne

•1 year ago

3 Replies

FAQs and sick day rules

Thanks for all your helpful responses to my question yesterday, and now I’ve got another one! Am I dreaming, or have I seen a page somewhere on this sitewith...

Thanks for all your helpful responses to my question yesterday, and now I’ve got...

calibriel

•1 year ago

8 Replies

Subclinical GCA?

I came upon the abstract of a research article which focuses on "subclinical GCA". It is only observational but points towards longer lasting disease, higher...

I came upon the abstract of a research article which focuses on "subclinical GCA...

dmart7

•1 year ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2023

unexplained bruising on arms and hands plus swelling

⁸Low Haemoglobin

Aching and sore hands and feet

Hospital Discharge

Travel Insurance with GCA

another infection!!

horrible taste in mouth, nothing tastes good

Is my Pred dose high enough or am I expecting too much!

Goal before reduce pred--low pain or no pain???

what do you think ?

adrenals kicking in

please can I have some advice

Advice for hand pain

Methotrexate Update

skin problems

dye used in a CT Kidney scan, triple phase BOTH,

Fatigue and muscle weakness

Night time prednisone

Teeth sensitivity, welling and PPi's

PMR or Fibromyalgia?

Can shaky hands and weak arms be part of dropping prednisolone.

Trying to taper very slowly again , advice on changing pred time from night to morning.

Follow-up: ER Visit for Excruciating Back Spasms

Flare after 2 year remission

Uncertain PMR or EORA?

Coping with extremes of temperature and pmr/gca

Prednisolone and COPD

Vision loss

FAQs and sick day rules

Subclinical GCA?

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