Coping with extremes of temperature and pmr/gca

[Animalover65]

Hi, at 2mg of Pred I am taking things gradually and pacing myself, however I find the hot weather, ,particularly when combined with humidity has quite a negative effect. I guess this is because the body is having to manage to keep its temperature constant as well as deal with a chronic condition. Just wanted reassurance that I am not alone really.

[SheffieldJane]

You are not alone Animallover65. I am spending a lot of time in my room with the fan blowing listening to audiobooks, whilst my family sunbathes. I think it is a combination of the hot weather and struggling Adrenal function. I feel pretty wiped out currently - and left out. 🌺

[Animalover65 in reply to SheffieldJane]

Thank you Sheffield Jane, yes its those poor old adrenals isn't it. Its hard feeling unable to join in certain things. I have recently got into the habit of sitting in my leanto in the early mornings when its cool. having a cuppa and watching the birds eating and drinking in my small garden. I find watching nature is inspiring.

[SheffieldJane in reply to Animalover65]

we have about 14 finches in my garden and I can see them at the feeders from my room. They are very busy nesting at the moment. Cheering along with blackbird song.

[Animalover65 in reply to SheffieldJane]

So lovely aren't they! I am amazed at how hard the parents work at feeding their babies. The robins seem tireless. I love the blackbirds song.

[Francesbarbara in reply to SheffieldJane]

Having got down to 2mg Pred I was feeling pretty good until the hot weather arrived and am now totally weak, unable to function and rather cross. I long for it all to pass. Hot weather has always been a problem for our family - fair skin, red haired Scots. My son used to cope beautifully with winter temperatures of minus 30 degrees when he worked in Moscow but the summers were dreadful for him..

[Animalover65 in reply to Francesbarbara]

2 mgs of pred seems a bit of a challenging place to be. I think the weather forecasters suggest it will be cooler in the UK next week! Fingers crossed.

[PMRnewbie2017]

Me too, currently at 2/1.5 taper. Feeling drained and disinterested. Praying for rain!

[Animalover65 in reply to PMRnewbie2017]

Its horrible isn't it! It feels a little cooler in Herts at the moment. Bring on the rain!

[SheffieldJane in reply to Animalover65]

We had massive thunder and lightening last night and some rain ( Yorkshire) fresher today but still sunny.

[winfong]

I live in the American South, and it's a real problem. In fact, we went so far as to get a 2nd home up north, in New England. Will be headed up there tomorrow. Should be much cooler.

[Animalover65 in reply to winfong]

Hope you enjoy some cooler weather in New England.

[Animalover65 in reply to winfong]

What was the temperature in the South?

[winfong in reply to Animalover65]

It'll hit the 90s, with terrible humidity. Throw in a few 100s there as well. Today, there was a 30 degree difference between the two places!

[Animalover65 in reply to winfong]

Wow sounds like you are in the best place. I hope politicians prioritise climate change now.

[Mayadill]

Sure i read somewhere - found it: IL-6 is involved in body temperature at any rate in mice.

It is capable of crossing the blood–brain barrier[7] and initiating synthesis of PGE2 in the hypothalamus, thereby changing the body's temperature setpoint. In muscle and fatty tissue, IL-6 stimulates energy mobilization that leads to increased body temperature. At 4 degrees C, both the oxygen consumption and core temperature were lower in IL-6-/- compared with wild-type mice, suggesting a lower cold-induced thermogenesis in IL-6-/- mice.[8]

en.wikipedia.org/wiki/Inter...

Meanwhile I'm winning, triumphing...I'm remembering to immediately put the milk back in the fridge!

[Animalover65 in reply to Mayadill]

Keep up the good work! I am attempting to clear the washing up quicker!

[Mayadill in reply to Animalover65]

Oh that did make me so laugh because of this: my coffee tasted extremely weird. i realized I hadn't rinsed the jug I use to fill the kettle. Finest blend of washing-up liquid. Yeuutch!

[Animalover65 in reply to Mayadill]

The hot weather is getting to all of us! LOL

[Bedwell]

it’s pouring in herts now.. hooray!!!!

[Mayadill in reply to Bedwell]

it's raining - oh, it was, for about ten minutes (Sussex). Dwindling hopes of being kept awake by deafening thunderclaps and a torrential downpour. On the coast, where we're usually quite good at wild weather, but according to the forecast a few drops might fall on Tuesday.

[Pollyanna16]

Hi, how I identify with you! Returned from seeing my son& holidaying in Norway to “concrete” like garden which our kind neighbours had kept alive & rather alot of commitments. Very humid air. So by yesterday I was really struggling & I’m sure my adrenals were very under par. So was my golf 😩. We have had no rain in Cornwall for a month & the hosepipe ban has been in force since last summer! So watering cans it has to be. I love my garden dearly but enough is enough. A little light gardening this morning & a post lunch snooze. Then catching up with paperwork including preparing for a phone chat with the Endo (several months late) tomorrow. The great news is I have a letter from the Rheumy to say the 3 annual Zoledronic Acid infusions I have had seem to have worked their magic & I am now only mildly osteopenic! Hurray!

[Animalover65 in reply to Pollyanna16]

Thats great new about the adrenals! Do you think the golf also helped?

[Pollyanna16 in reply to Animalover65]

Great news about the bones, not so great re, the adrenals. The Endo has, yesterday, confirmed that I am never likely to be off a low dose of Prednisolone. Pretty disappointing, will just have to manage my life better 😬. I am sure golf, Pilates, Aqua aerobics all help with bone density but I guess the major factor has been the infusions & taking regular doses of AdCal. Oh & by the way it’s rained over night hurray!

[Animalover65 in reply to Pollyanna16]

Sorry, I meant great news about the bones! I have been on AA and Evacal for a year - so keeping fingers crossed for next Dexa . Going to add swimming to my repertoire, as started a ballet class recently - not quite like Dawn French's performance hopefully! Had thunderstorm in Herts this morning too!

[Pollyanna16 in reply to Animalover65]

ha ha is that Silver Swans? It’ll be fun I’m sure. Glad you’ve had the rain too 😃

[Animalover65 in reply to Pollyanna16]

It is great fun! .Its the Vale academy of performing arts. We are practising for a small part in a production at the Spotlight theatre in Broxbourne next year. The group I have joined are older women, some quite experienced and graceful . I have been told I am doing well- hopefully I wont be the fairy elephant!

[Pollyanna16 in reply to Animalover65]

wonderful 👏👏👏

[Body_bonkers]

I’m really struggling too - hate this hot weather

[Animalover65 in reply to Body_bonkers]

Hot humid weather is horrible for PMR / GCA isnt it! I think the forecast says cooler weather in the UK next week- hope so.