Aching and sore hands and feet: I've had PMR and... - PMRGCAuk

PMRGCAuk

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Aching and sore hands and feet

Viola1 profile image
8 Replies

I've had PMR and GCA since 2018. I'm now at 3.5 mg prednisone. I've developed carpal tunnel - took up knitting and probably surf on my phone too much! Both my feet and hands and wrists are sore and aching. Carpal tunnel explains the hands and wrists, but what about my feet? I have a new rheumy who diagnosed the carpal tunnel and had me go to 10 mg for a week, about a month ago. The carpal tunnel pain and weakness decreased quite a bit, but didn't go away.

I would appreciate any help with what might be causing my aching, sore feet.

Thanks so much! This forum has been so helpful through my PRM/GCA journey.

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Viola1 profile image
Viola1
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8 Replies
Rachmaninov2 profile image
Rachmaninov2

I would like to compliment you on your knitting Viola1, it’s beautiful.

I sympathise with you regarding your feet, I have been having problems for some time. Have been told that mine is being caused by inflammatory arthritis/spinal stenosis.

Does your new rheumy have any thoughts on what might be causing your sore aching feet?

I hope you find the answer and some respite very soon. 🤞😊

SheffieldJane profile image
SheffieldJane

My feet burn at night and sometimes ache in the daytime. I must also seek yet another diagnosis. My husband massages them with a foot gel which really helps. 5 Kind Natural Foot Gel available at Amazon. We get through pots of it.

Your knitting is wonderful.

PMRpro profile image
PMRproAmbassador

I suspect it possibly isn't just CT but the 3.5mg is just slightly too low so inflammation is building up and 10mg for just a week wasn't quite enough, But there could be osteoarthritis pain too - pred masks that as well.

Viola1 profile image
Viola1 in reply to PMRpro

My rheumatologist actually recommended 15mg for one week- I took 15 mg for one day and then 10 mg for 6 days. Maybe I should have taken 15 all week.

PMRpro profile image
PMRproAmbassador in reply to Viola1

It may have made a difference ...

Twopies profile image
Twopies

same here—sore and achy hands and feet. Going up on pred is no help at all. There’s no swelling nor joint pain in either of them. For my hands I’m thinking it might be lifting my iPad all the time, picking up heavy books to read several times during the day, carrying a watering can to water plants, etc. and feet…well, they’re moving all the time; straps bother them, lace up shoes bother them, etc. I’ve got muscle wasting, my poor hands and feet look bony and scary—Halloween appendages. Btw, love your knit products, so talented!

Body_bonkers profile image
Body_bonkers

Might be worth a trip to a podiatrist as my foot pain/swelling appears to be a combination of PMR and other causes

Rugger profile image
Rugger

My hands ache and I put it down to knitting, rug-making, carrying water for the garden during this hot spell......

Those hats are beautiful!

I'm at 4.5 / 4mg pred.

PMR 2016

GCA-LVV 2019

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